tag:blogger.com,1999:blog-35510962.post1314462783757989875..comments2023-06-27T15:09:41.788+02:00Comments on Access denied-living with multiple sclerosis: '' Go Where No Man Has Gone Before.''Herradhttp://www.blogger.com/profile/13728207969811635579noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-35510962.post-36024761612941777302010-06-05T22:16:03.082+02:002010-06-05T22:16:03.082+02:00Hi Kris,
Glad you liked the post, it is amazing ho...Hi Kris,<br />Glad you liked the post, it is amazing how many of these drugs are being swallowed with no positive results for quite a few.<br />Must have been difficult for you seeing your mother going through such a difficult time<br /><br />Hi Stephany,<br />Sometimes the moments are very painful, but they pass and crying makes the tension go away.<br />I know and very much admire your stance against the pharma industry.<br /><br />Hi Mort,<br />You are right about lesions not having any bearing on how it will affect us and the progression of <br />If only there was more effort made to properly research the causes of MS instead of making more and more money making drugs.<br /><br />Hi Mary,<br />Thanks for reminding me of that beautiful song by Stevie Ray Vaughn, love his music.<br />Thanks for sharing the info about the study you are involved with, you are right about socialized medicine it would be better, perhaps need driven not profit driven.<br /><br />Hi Juli,<br />Know exactly what you mean about several days attack you all at once.<br />Thanks for the link to your old blog will read it, first October 2006.<br />Glad we have met.<br /><br />Thanks you five wonderful people fro coming by nice to see your comments<br />.Love,<br />Herrad.Herradhttps://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-3428129821597651022010-06-05T09:11:51.324+02:002010-06-05T09:11:51.324+02:00Hey Girl,
Sorry you had such a bad day but sounds ...Hey Girl,<br />Sorry you had such a bad day but sounds like you let off some steam by crying. Sometimes it just sucks. I try to take one day at a time but sometimes several days attack me all at once. Here is a link to my old blog. If you feel inclined and go back to Oct. 06 you will see some Katrina entries and see why I can relate to your beaurocratic nightmare. Some photos of French Quarter and background on me and Robert (met him after Katrina). Hope you have a better day today. Thank you for your kind comments on my other blog.<br /><br />Love,<br />JuliAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-35510962.post-57027013858722440502010-06-04T23:23:04.617+02:002010-06-04T23:23:04.617+02:00Stevie Ray Vaughn's song said, "Every tea...Stevie Ray Vaughn's song said, "Every tear that I cried only washed away the fears inside." They are essential so you do not blow your lid as we say. Like a safety valve. I pray for relief from your bureaucratic nightmare/quagmire. If a bureaucrat had to face you and see your tears and your lack of arm supports, they could not resist expediting equipment to meet your needs. That is how disabled persons must do in the US. Sit in front of congress and tell your story. Now about studies-I am on Combi-Rx study which is throught the NIH/academic excellent neurologists. It studies correlations betweens MRI/labs and functional ability. Also on a DNA study for the same. I am sorry for those who have reactions or were in bad studies. I believe socialized medicine can rush to limit expensive treatments. I am willing to trial these drugs even if I get something worse. It is for all the next people with MS too.Great pics as usual!Love Mary.Travelogue for the Universehttps://www.blogger.com/profile/01127086480471321349noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-56962040162535926492010-06-04T22:16:04.719+02:002010-06-04T22:16:04.719+02:00it has been proven that the ammount of lesions has...it has been proven that the ammount of lesions has no effect whatsoever on how bad the MS will affect the patient. thats us herrad,in a study,one sufferer had 4 lesions,and was confined to a wheelchair,another had a scan that frankly looked like swiss cheese.more white lesions in brain than brain.and had very mild dymptoms that hardly interfered with every day living.i had 4 in brain,5 inspine.are there more now?no idea but i know im worse.we are all different herrad.bloody drug companies are bringing out new MS drugs almost daily.many,as in the article,make people worse.something wrong there somewhere.tc love mort xxmortonlakehttps://www.blogger.com/profile/12248807578958314195noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-55251565737528818282010-06-04T19:45:09.960+02:002010-06-04T19:45:09.960+02:00Hi Herrad,
I'm sorry you had that moment of a...Hi Herrad,<br /><br />I'm sorry you had that moment of anguish, you're a trooper, and it's totally understandable for you to sob about this. Good to get it out as you say. I'm also disgusted with the way pharma companies are, as you know.<br /><br />Dare to dream.<br /><br />I hope you and Richie are having a nice Friday evening.<br /><br />HUGSsoulful sepulcherhttps://www.blogger.com/profile/12271584927611299868noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-2439628147574355442010-06-04T16:28:31.189+02:002010-06-04T16:28:31.189+02:00Herrad, this was a great post. It made me think of...Herrad, this was a great post. It made me think of my mom and the MOUNDS of pills should would take everyday in the 90's. I think about it now and wish that I was older when all of this was happening because I'd probably say enough is enough! These pills aren't helping, cut it out! I'm sure she was on all of the pills that were mentioned in this "fiasco" that has been revealed and then some. I hope you get your chair issue situated. Have a great weekend. I hope it's relaxing and fun!Pretty Zestyhttps://www.blogger.com/profile/05066119133197587199noreply@blogger.com