tag:blogger.com,1999:blog-35510962.post3018582420441552801..comments2023-06-27T15:09:41.788+02:00Comments on Access denied-living with multiple sclerosis: New Case Manager.Herradhttp://www.blogger.com/profile/13728207969811635579noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-35510962.post-79927913560990809272009-08-15T15:26:35.494+02:002009-08-15T15:26:35.494+02:00This comment has been removed by the author.Herradhttps://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-48334814644425455782009-08-15T15:26:33.386+02:002009-08-15T15:26:33.386+02:00Hi Rain,
We are very lucky to have our dogs, Spike...Hi Rain,<br />We are very lucky to have our dogs, Spike keeps me entertained all day.<br />He always knows when Richie is not feeling ok and has to be by him cuddling and then a game.<br /><br />Hi Celeste Maia,<br />I had a very good night thanks, it was very bad what happened.<br />Hope the w/chair will be done soon, say by end of the month so I can go and visit Willes and sit outside with her.<br /><br />Thanks both of you dear people for visiting.<br />Have a good day.<br />Love,<br />HerradHerradhttps://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-15618126328274614672009-08-15T14:39:24.209+02:002009-08-15T14:39:24.209+02:00Good morning Herrad, I hope you were able to have ...Good morning Herrad, I hope you were able to have a good night. I was really disgusted to read the way the people behaved. How can they be so insentive and ignorant? I am hoping for a fast improvement of your chair so that you can enjoy going out with Richie and enjoy the sights. Hugs, CelesteCeleste Maiahttps://www.blogger.com/profile/08683512170853367791noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-1397048965654164022009-08-15T14:30:55.349+02:002009-08-15T14:30:55.349+02:00Oh my gosh....Winston is the same as Spike! As lo...Oh my gosh....Winston is the same as Spike! As long as we're playing, there is nothing else that can be bad or sad or wrong or painful! When I'm feeling sad, he knows it. He walks up to me and just stares at me, and when I look his way he lowers his head a bit and starts to wag his tale...trying to provoke me to chase him....Aren't we lucky to have them???Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-35510962.post-70401375466897378232009-08-15T12:49:20.866+02:002009-08-15T12:49:20.866+02:00hI Steve,
You got the expression very well.
I am a...hI Steve,<br />You got the expression very well.<br />I am amazed to hear from Richie, that I had mostly had a neutral expression on my face during on 10 am meeting..<br />Amazing as I felt anything but neutral.<br /><br />Hi Webster,<br />I am hopeful that they have learned, think they will try to get it done well this time.<br />You are right it has to be better this time around.<br /><br />Hi Andy,<br />It's been crap stuck here for a year because the w/chair was not adapted adequately for me.<br />Hope I can get out soon and get into the park with the dogs.<br /><br />Hi Patrick,<br />Good to hear that Patti has had no problems with her w/chairs, good measurements are important and attention to detail.<br />The w/chair we bought is made to measure, the difference between the length of the seats is 10 cm's and 5 cm's in width.<br />Hope that this time they will get it right.<br /><br />Hi Amelia,<br />I find it very difficult to get through those meetings.<br />Have to keep reminding myself of what Richie says which is ''it's only business''.<br />That is it, to us it is personal and to them it is just business.<br />Hope your sores heal soon.<br />Good to eat regular fish in your diet, especially oily fish like mackerel or herring.<br />Apparently a tin of sardines a week will do it too.<br />I like to do both.<br />Will visit yours after posting this.<br /><br /><br />Yesterday morning was not easy, difficult to feel good about the meeting.<br />Had to keep reminding myself what the goal was.<br />The two of them seemed to be saying that this would be done well and as quick as possible.<br />Just wish that they could stop patronizing us, they also keep walking round the wheelchair and 'kicking the hubcaps' to show off their expertise.<br />I just want to cut to the chase and am hopeful that they will too.<br />Not easy but I am optimistic this time the w/chair will be well set up.<br />After the adaptions have been done Jenny will be here measuring the pressure distribution and if that is good then I guess we are all set to start building up sitting in the chair.<br />On the balcony, then downstairs on Willes back porch liming with her and the neighbours.<br />Sounds like a good plan.<br />Have a great Saturday.<br />Love,<br />HerradHerradhttps://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-67127900604015943462009-08-15T08:04:52.817+02:002009-08-15T08:04:52.817+02:00Hi Herrad,
Well done for getting through the morni...Hi Herrad,<br />Well done for getting through the morning. How you can hold your tongue and keep your dignity, when these people have treated you SO badly, is amazing and a testiment to you as a person. <br />You are quite amazing.<br /><br />I am dealing with a couple of pressure sores myself. I don't know how or why I got them, but it certainly gives me an insight into what you have had to go through this past year. I have had mine for the past 5 weeks. They are taking a long time to heal and that is very frustrating. Apparently, with MS, we take longer to heal anyway. <br />You know how much I respect both you and Richie, but when I read these posts on how you have been treated, it just adds another layer of respect.<br /><br />I have just updated my blog and would love to hear from you both, I so appreciate your thoughts and support!<br /><br />Thinking of you always,<br />Big hugs and lots of love to you, Richie and of course the dogs!<br />XxXxXAmeliahttps://www.blogger.com/profile/15005720150574964538noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-36375888354158513172009-08-15T07:45:44.744+02:002009-08-15T07:45:44.744+02:00Herrad! What a nightmare! Reading all this I consi...Herrad! What a nightmare! Reading all this I consider us lucky that whenever Patti has been measured for her wheelchairs over the years she has been blessed by caring people with attention to detail. <br /><br />I pray this all ends well.<br /><br />Caregivingly Yours, PatrickAnonymoushttps://www.blogger.com/profile/14000299655117252000noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-12341587393235754112009-08-15T06:20:01.066+02:002009-08-15T06:20:01.066+02:00Stinks that you are at their mercy, but I hope it ...Stinks that you are at their mercy, but I hope it all goes well and you are out in the park before too long! Have a great weekend.<br /><br />Andyawbhttps://www.blogger.com/profile/05029157758859447422noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-72617221495559025292009-08-15T05:25:38.679+02:002009-08-15T05:25:38.679+02:00Hopefully everyone who is still involved will have...Hopefully everyone who is still involved will have learned from those errors and do a better job for you this time. You know it just HAS to be better this go 'round. I'll offer up a prayer that it does.Websterhttps://www.blogger.com/profile/13518858062969978457noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-77638924043048229412009-08-15T05:05:40.639+02:002009-08-15T05:05:40.639+02:00During the whole process I was sitting next to the...<i>During the whole process I was sitting next to them on the shower chair being put in the chair everytime they needed to check the changes.</i><br /><br />I know that expression. You, know. The one that you made every time you were transferred into the chair to "check the changes." I build my life around avoiding that expression.stevehttps://www.blogger.com/profile/18134766859291227041noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-51885724245506199092009-08-15T00:54:36.690+02:002009-08-15T00:54:36.690+02:00Hi Rain,
It has been dreadful the way they have tr...Hi Rain,<br />It has been dreadful the way they have treated me.<br />I do cry quite often, that upsets poor Spike who rushes off right away to get me one of his toys.<br />Spike thinks everything is good when you are playing.<br />My evening was very pleasant, hope yours is/was too.<br />It's 12.30 hre wonder what time is it for you?<br /><br />Hi Jen,<br />Shame they did not do the job properly last year.<br />I try not to deal on it as it is too depressing.<br />Really hope I will get outside soon.<br /><br />Hi Libby,<br />It is very frustrating indeed,shame the people who deal with handcapped people are not all sensitive.<br /><br />Thanks for coming by and leaving a comment.<br />This morning was very difficult for both of us to have a meeting with these two people who caused me to spend 1 year in bed.<br />Really difficult for us to be in the same room as them.<br />Hate being patronised and they do it everytime.<br />Keeping optimistic and hoping that this time the w/chair will be adapted properly.<br />Have a good evening and a great Saturday.<br />Love,<br />HerradHerradhttps://www.blogger.com/profile/13728207969811635579noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-10775074247722381612009-08-14T22:28:02.118+02:002009-08-14T22:28:02.118+02:00oh, sheesh, herrad...doesnt it suck when you'r...oh, sheesh, herrad...doesnt it suck when you're finding such difficulty getting stuff you NEED?? [huge hugs] to both of you!Libbyhttps://www.blogger.com/profile/04873518747021842739noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-24406193941650643652009-08-14T21:55:38.860+02:002009-08-14T21:55:38.860+02:00Amazing how something as simple as faulty weight d...Amazing how something as simple as faulty weight distribution can cause such serious repercussions. <br /><br />Hoping for a speedy return to your improved chair, Herrad, and the ability to get out with Richie and breathe deeply the outside air.<br /><br />Love,<br /><br />JenJenhttps://www.blogger.com/profile/17421022098477662697noreply@blogger.comtag:blogger.com,1999:blog-35510962.post-88076312291461883772009-08-14T21:37:41.048+02:002009-08-14T21:37:41.048+02:00Oh Herrad....the injustice disgusts me...the way t...Oh Herrad....the injustice disgusts me...the way they disregarded you...you know that I know first hand how that feels, although you got the brunt of their ignorance having been bedbound for a year...just terrible...I'm just so glad your appointment went well, the new case manager sounds very promising. How do you NOT cry...I do understand that you and Richie and the dogs are a "pack" so to speak, :-), but I imagine it very hard. I tip my hat to you! Hope your evening is going superbly! How is the weather in Amsterdam? I'm sweating the pounds away, lol!Anonymousnoreply@blogger.com