Access denied-living with multiple sclerosis
About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Friday, August 14, 2015
Still Trying To Enjoy Life.
Both of us need a boost as life gets harder due to my curvature of the made worse by lack of muscles caused by being in bed since feb 2012.
Now I need moving every two hours through the night, most nights we get 3 hours sleep then i sleep on only to be ripped out of sleep by a spasm.
In constant pain, discomfort but still enjoying all I can.
Saturday, May 23, 2015
Back Again.
It had been my intention last week Tuesday to write every day, typically things turned out different to how I planned.
On Friday night we watched later with Jools Holland, it was a good show some of the artists appearing were:
Paul Weller, Father John Misty, Curtis Harding and Lianne La Havas I only knew Weller out of these four.
I thoroughly enjoyed Father John Misty, Curtis Harding and the lovely talented Lianne.
Sadly since then Google blockaded my blog and posting became impossible which upset me.
So glad that I could log in to my blog just now and not see Google's message informing me my blog was blocked.
Today has been a pleasant day, we have seen Southend beat Wycombe Wanderers at penalties at Wembely,Southend go up to League One.
Richie is happy tonight Southend have never been to Wembely before happy days for Richie.
Hopefully Gooogle's faulty algorithms have been corrected and access won't be denied and I will be able to post tomorrow.
Friday, May 15, 2015
Alot of crap.
When I was logging in to my blog just now and it did'nt work yand instead of seeing my posts I was locked out.
Once again, like the day before there was Google's message telling me my blog was blockaded as they thought there was suspicious activity on it.
If it wasn't so very annoying it would be funny, there was nothing going on with my blog, it was only me posting again.
Luckily the problem was relatively quickly sorted, what a relief, hopefully this will not be happening daily, it should not have happened now.
By the time I could write it became almost impossible for me to sit well for more than a few minutes without needing to call for Richie to adjust my posistion.
This happens regularly now, some days I sit better than others, one of the reasons for this are bowel movements.
If I need one then it can become really difficult to sit in a stable position to use the Lipstick well.
On those days as soon as I start to have many errors, at that point these days its best to stop, save and return
Thursday, May 14, 2015
Great To Post Again.
Good to be writing something everyday, in that way hopely it will be possible to gently re-establish doing it daily, I have plenty to write about so my plan will surely work,
Can't believe now that I stopped writing daily in December 2012, pointless to reproach myself now, especially as it is something that I do all the time, iI hate doing it,hard to stop.
When Richie got me the Lipstick in September 2014, my intentio had been to start posting daily, forgetting that the new mouse would need practise, then things did not go as planned.
Everyday my intention was to write, sadly it didn't work which was quite demoralising, the other day I decided that I wanted to stop endlessly prevaricating and write.
Life is too short to waste reproaching mysef endlessly, making myself unhappy abit of an odd way to be, especially when posting is what I enjoy
Wednesday,13May, 2015 Access Denied to my own blog tonight.
It has taken me hours to get into my blog tonight because Google had blocked my account, they thought someone had hacked my blog.
Not so, it was me posting again.
It's too late now for more and I am tired but happy I have my blog back
Tuesday, May 12, 2015
Trying to Seize The Moment.
It's more difficult than I thought to seize the moment and post again, but it is more difficult than I thought it would be.
Realise now that I have to reinstate posting as a thing that I do everyday, today makes me think this ttime I will make it happen.
Have missed posting and contacts with friends.
See you tomorrow.
''
Tuesday, March 24, 2015
Good Intentions.
The post I posted on 31st of December was meant to ttbe my first of many daily posts,sadly this did'nt happen and after that I had many more plans,good intentions towrite my blog dailysomething I miss.
I am hoping that writing this will break my block and I can start writing again.
I am hoping that writing this will break my block and I can start writing again.
Tuesday, December 30, 2014
Christmas 2014 has been great.
Christmas has been very enjoyable with my darling Richie,
Even though I am a quadroplegic now, this ms has really fucked my body but
not my mind, I am still cheerful and enjoy everything I can.
So glad I get medicinal cannabis here and don't have to use opiates,which do more harm than good. Canabis effectively curbs the pain,allows me to relax and enjoy life without any damaging my body..
In 2015 i shall post regularily,which
Which i look forward to.
In 2015 i shall post regularily,which
Which i look forward to.
Hfappy New Year.everyone.
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