Pedro Friedeberg.
http://en.wikipedia.org/wiki/Pedro_Friedeberg
A mail just arrived from Johanneke, my occupational therapist, informing me that the support cushion for in bed will be delivered on 16 May.
This was applied for on 2 February, I got the approval in March for it to be made for
me in April.
Friday 2 April, Johanneke phoned the company Quatron and heard it would be ready in 2 weeks.
Now it will be ready to be delivered on 16 May, amazing, also that I had an appointment on 30 March for a lighter joystick.
I was promised a quick resolution, a quick appointment for the lighter joystick to be installed, since 30 March not a word.
Wonderful world of expensive time consuming burocracy, which is not set up to provide swift solutions for handicapped people like me.
Seems once again I get to be patient and wait, if only the progression of my ms could wait then there would be no problem.
I have sent heaps of mails, so far no news from anyone, no appointments and no sign of my getting the lighter joystick anytime soon.
This would be good to get while my hands/arms still function, I fear that it will be too late as everything else is, but who knows maybe I will be pleasantly surprised.
