Yesterday I took a 2 mg diazepam 30 minutes before Richie transferred me to the wheelchair from the shower chair.
After organising my posture and making the necessary adjustments, Richie sprayed me with perfume and put in my choice of earrings.
Then I tried to hold the joystick and turn the wheelchair around and leave the room, and it worked.
Was a most glorious feeling to feel myself steering the wheelchair with no problems into the front room.
Happy days indeed, felt very good about that, very good indeed, so today will try without the diazepam and see what that is like.
If it is too difficult then I may have to take 2 mg of diazepam to facilitate my steering, certainly will take it this Thursday, for the hospital appointment, when I have to get into the lift and down to the mobility bus and into the bus.
Also on the 17 th to the Drive by Truckers gig, I sent them a mail telling them I would be at their concert and my worries that being in a wheelchair I might not see them well.
Got a lovely response from Jenn, the bass player, who gave me the name of their tour manager and sound man, for in case we needed assistance at the gig to see them properly.
Really nice of her to respond am very much looking forward to the gig next week Wednesday, the one bus trip I am looking forward to 100%.
The one good thing that is happening, after the sadness of Richie’s father dying weekend before last.
Sadly Spike’s condition is getting worse, we hope the clinic in Utrecht can help if not we will have to make a difficult decision; just thinking about it has made us both cry alot today.
We can’t leave our little chum to deteriorate, especially if there is no prospect of a recovery and only of him getting worse and being in pain.
So we will have to let the vet put our little friend to sleep, that will be very difficult for us both and for Marleen too who will miss her little pack mate.
Will miss him so much, he is such a lovely little fellow, he has been such a lovely playmate, and m ‘big’ protector, our Spike.
Also the progression of my MS is not good news right now and it is a cold and grey November day too.
For now we are going to stay hopeful and optimistic and enjoy Spike’s company and face up to whatever needs facing when it actually happens.
Going to take my inspiration from our dogs and live for the moment, the here and now.