A Very Difficult Day Today.

The Misunderstood, 1938.
Collection of The Man Ray Estate.
http://en.wikipedia.org/wiki/Man_Ray

I am having a difficult day, it is hot and I can not sit up, keep leaning to the left which makes typing hard to do.

Not good feeling like this, so unable to even sit propped up by heaps of cushions, it’s horrible, feel even more handicapped.

Felt like my whole body had let me down badly today, like the only thing that was working were my brains, sadly they could not help me to sit.

Having a shower helped me feel better; now sitting in the front room life feels more pleasant, than this afternoon.

I got a letter from Agis telling me that I will be able to get cannabis, mediwiet free on prescription.

Apparently the Ministry of Health has decided that for some diseases cannabis is the most effective medication, so should be free on prescription.

That is excellent news; I hope Agis send me the relevant document so that I can request a prescription from my doctor.

Hopefully this will happen next week, the mediwiet via the chemist, is a Haze type of cannabis which is good for relaxing the muscles.

Looking forward to getting that, as well as the support cushion, which were promised tomorrow.





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Keeping Hopeful.

Zambezia, Zambezia, 1950,

Wilfredo Lam.

http://en.wikipedia.org/wiki/Wifredo_Lam

Last night we both noticed mosquito’s, for the first time, up until now I have not needed to sleep under my net.

Fully expected to wake up to a hot sunny day, sadly it’s the opposite, a grey, dull, overcast cool day

Guess any day now we will wake to hot, humid weather; I shall enjoy these grey days and take it as it comes.

Yesterday was a trifle upsetting having the support cushions here at last, then noticing that the size was not correct.

This meant I would not be able to sit up and use my table or my laptop, sitting fully supported is the function of the cushions.

It was a strange feeling being totally surrounded by the cushion, instantly felt the support that they provided.

Dennis Klein from Summit has promised that the cushion will be adjusted this Monday; he said they will be back next week Friday.

I hope he is right as I really need the support they offer now, to sit up in bed, keeping hopeful that they will be here when Dennis promised.

Having a cocoon around me is not my idea of fun but sadly I need support now, if the cushions provide that then that is brilliant.

Treat People With Respect

Portrait de Maria Felix
Bridget Bate Tichenor.
http://en.wikipedia.org/wiki/Bridget_Bate_Tichenor

Yesterday evening I received a mail from Johanneke, my occupational therapist, I have been mailing her for weeks, without getting any response.

On the Thursday I sent her an e-mail requesting she phone me the next day, I thought a phone call would be a good way to discuss the situation with Quattron, she did not phone.

The only e-mail I had was last Friday, telling me Quattron had called her and the support cushions would be delivered on 24th June.

That was all, nothing more, I responded and queried why it would take another two weeks and asked if she would be here too.

No response, repeated the question in a few mails during the week again nothing, until yesterday.

Johanneke finally lets me know why it was taking two extra weeks to get the urgently needed support cushions.

The delay was because the 24^th June was the only date both her and Dennis Klein could agree on.

Could this not have been communicated in last week Friday’s mail, had I been informed immediately the situation would have been clear.

I was angry and mailed her right away, saying that being fully informed is important especially in my situation, felt she had attempted to patronise me.

Feel very disappointed that my occupational therapist can’t treat me correctly by keeping me informed.

If my therapist can’t treat me like a normal human being and show some respect, how can we have a good working relationship.