Showing posts with label spasmes. Show all posts
Showing posts with label spasmes. Show all posts

Sunday, October 17, 2010

Sunny Intervals For Sunday

 

Unknown Artist.

Slept wonderfully well last night, even managed to fall asleep again this morning when I woke up sooner than I wanted to.

Asking Richie to shut the windows really helped, as soon as the cold air was no longer wafting into the bedroom it was easy to slip back off to sleep.

This is always such a big achievement that on the rare occasions it occurs I enjoy it tremendously.

Feel quite relaxed now after being able to do something as ordinary and simple as falling asleep again after waking up.

Never realised until MS that it would become such a rare event, did not realise before, that relaxing my body would also be a rare occurrence.

When I press the button on my bed that lowers the foot end and then the head end of the bed so that I can sleep, I can’t stretch out and relax myself.

I never thought that my body would not be able to relax very much or not at all, that thought never crossed my mind, certainly not when I was just diagnosed.

I can not move my legs or my torso, so just have to lie as Richie has organised me, can not straighten a leg or tense it up and relax.

My way of relaxing is to fall asleep and hope that waking up will not be by leaps and bounds, literally, as my fingers cramp and twist in jolts of movement.

Hands do the same ball up into tight fists and are difficult to straighten out, then the legs start drumming and gently vibrating and kicking up.

Relaxing only really happens in my mind as I try to override the sensations produced by the nerves transmitting the signals.

Scrambled messages, wrong messages, jumbled messages, nerves are all transmitting them at the same time, or so it feels like and no wonder it feels so awful and can’t be controlled.

If they could then I think that researchers would be well on their way to working out the causes for MS.

Controlling the nerve message would surely be able to change the w ay MS affects us all, what a wonderful fantasy one I can enjoy having many times.



Saturday, October 16, 2010

Another Saturday.


Jorge Damiani
b. 1931 Uruguay.
 
This morning I woke up early again, this time Richie noticed and got me some thc vapour which helped me to sleep for a few more hours.

Made all the difference for both of us as otherwise I would have ended up not being able to sleep and feeling every cramp and every spasm.

Hate that happening as it makes me moan with the pain and that of course disturbs Richie and wakes him up too often.

Really wish that I did not disturb him so much, there is however nothing that I can do apart from try to relax and stay calm and quiet, not always possible with pain.

I do try my best as I am aware that Richie needs his sleep after being busy with me all day and evening, sometimes even into the night.

Nice surprise tonight when John, a good friend of ours from Glasgow phoned, lovely to speak to him again after a year.

He used to live in Amsterdam but left here in 1996 and moved back to Scotland; think we saw him for the last time in 1999/2000.

Be very nice to see him again, he says he may come over and visit us soon, even sooner if he gets work over here.

Hope to see him, still miss him being in Amsterdam, funny really considering how many years ago it is since he left.

Guess that a good friend’s absence is always missed, there are plenty of other friends that I miss here, and most either went to new places or like John went home again.

Good to be in touch with friends, hear how they are doing and catch up with their news, nice to get John’s call tonight has cheered me up lots.

Since Thursday my catheter problems seem to have stopped for now, should be getting an appointment with the Urologist next week.

Be good to get the supra pubic catheter done as soon as possible so that I will be able to go to the Drive by Truckers concert on the 17 November without worry.

Looking forward to not worrying about my catheter anymore soon, in fact hope very soon now.