Showing posts with label Amsterdam city Council. Show all posts
Showing posts with label Amsterdam city Council. Show all posts

Wednesday, May 09, 2012

I Won't Hold My Breath.

Thomas Bak

This afternoon was my long-awaited appeal against the decision of the Amsterdam City Council to refuse my application for air conditioning.

When my friend Anja, phoned the court last week Thursday they told her that  I could not be present via Skype or video because they were inadmissible in the Amsterdam court.

I was told that they would however phone me during the hearing and ask me questions.

When Anja was here last Thursday, I gave her letters from Janneke Stolwijk, the Rehabilitation Clinic doctor and from Milou Sloof, the nurse, who is looking after my open pressure sore scar.

As well as a statement from me listing all of my many problems with temperatures above 22°.

In my statement I explain that as our windows are from floor to ceiling and open inwards this means we cannot use sun blinds.

It also means we can't buy a separate air conditioning unit because we can't place it under the window and let the tube hang out of the window as you need to do.

I also explained that my problem is the air temperature and not sunshine, seeing as our apartment faces to the east and to the north it means that we only get sunshine up to 09.00 in the morning making sun awning redundant.

From lunchtime I was waiting quite apprehensively for the court to phone me, sadly they couldn't be bothered to keep their promise to phone and ask me any questions or hear my side of the story.

The hearing was at 14.40 this afternoon no one phoned me, until 15.20 when the phone rang and it was Anja to tell me it was all over and I would receive the court’s decision around 22nd of June.

While I have never had much chance of success, it was slightly disillusioning to hear my friend tell me that they only allowed her to read a tiny section of my statement, and they were still harping on that my problem would be solved with the use of sun awnings.

As if they would stop the heat of the air temperature which causes me all the problems in the summer.

Well who knows maybe the court officials will actually go away and read the documentation I provided and with an open mind make their judgement.

I won't hold my breath.

Wednesday, June 02, 2010

Being Optimistic.











French Art.


Ye1sterday afternoon was tiring even thought I had nothing to do except sit and occasionally lift my arm so Harm, from Welzorg could work out at which height I needed them to be.

And Michelle from ARCA, was there too and took notes, also for herself

Sadly Harm could not actually do anything yesterday as the adaptation has made the chair higher and he will have to get arm rests made specially for me.

So that means he has to make an estimate and Amsterdam City Council have to ok this before they can make it.

Michelle has to also put in a document stating the reasons for the arm rests needing to be adapted.

Hope it will not be long as rolling around without proper arm support is not pleasant as my arm gets very tired and I have to stop every few minutes.

Hope it gets done before everyone disappears on their summer holidays

Trying to keep calm anod optimistic that by the end of the month it willl have been done and I can finally roll around in comfort.
http://www.blogger.com/post-edit.g?blogID=35269181&postID=7257250595212529770
Hope that is sooner than I think.


Some Old Favourites:
Sidecar Speedway 2008 Reading Racers



Vintage Bike Scrambling in 1960's with Murray Walker



Greeves Classic Motorcycle @ Bristol Show



Greeves Test Ride




Greeves



Wednesday, October 14, 2009

Sunny and Cold.


















Spike and Marleen and I, and our building and blue skies.

The temperature is dropping fast now, last night went to sleep with my arms out of the duvet as I felt too warm.

This morning wanted to pull the duvet up over my head so cold did it feel, and not just to me.

We had the heating on first thing and again a wee while ago, the sun however is shining brightly which I love.

It makes everything look good, less street sounds in the mornings now, as the workies have no desire to congregate outside on the bench in the kiddies play area for coffee and chats.

Funnily enough the man that empties the bins on the play area either does it very quietly or not at all as we have not heard him since it has become cooler.

I am not complaining as there is no fun being woken at 7.30 by someone seemingly beating metal with a hammer, that is what the bin emptying sounded like.

Still have not heard anything about the paperwork finally being sent successfully to the council department for xtheir evaluation.

Have to concentrate on other things as there is nothing I nor anyone, not even my doctor can do to speed up this situation.

Guess that it does not surprise me as this happens so often, when you need help and assistance because you are vulnerable and can not afford it yourself you often risk getting negligent treatment.

This is how the working classes always get treated, which is rich when you consider who does the actual work.

Oh well live and let live and here is hoping for true progress in all areas of human life.

For a better tomorrow for us all, but first I shall enjoy what today has,such as beautiful sun and blue skies.

Hope you all have a good day.



http://www.eyelogue.com/donniecam.html

Monday, August 31, 2009

Social Care























Since they opened up the Health Insurance market here, which they called liberalising the market, this has meant that a public service has been re-designated as a profit making enterprise and the franchiches were up for grabs.

The health insurance has gone up considerably in price and has been cut back even more considerably.

Up to 2005 the basic cost per month was aprox. 30 guilders, for which you got good care, also regular dental checks by the dentist.

And then they turned public companies into private companies and opened up the market and health became a commodity and now we pay 250 Euros each per month and get less than we did previously.

Plus everyone has to pay 150 up front at the beginning of the year.

It is also very frustrating here, a new law the WMO came into force in 2007, up to then local council carried out the governments guidelines which was organised and administrated centrally from The Hague.

Now the new law which administers the provisions for the sick and handicapped is administered locally and has variations depending on location.

Each city and town has the right to specify what they will provide; in Haarlem it is easy to get a hand bike attachment for the wheelchair, but not in Amsterdam.

I applied for one in 2007, on the advice of the ergo therapist by the RCA, after several months where it seemed the outcome would be good; I finally got word that I had lost.

But had I really lost as instead of a nothing I was a going to get the Speedy, the electric scooter as soon as I handed in my scooter.

This was great news as I could not use the scooter as I could no longer walk at all b y the time I was given the scooter.

Had I been given it right away when I needed it I could have had 6 months use of it, as it was it went to the RCA with me when I became an in patient and the scooter sat in the hall and was only used once when I had a test drive in the park.

The WMO is a frustrating law, while the law states what you have a right to mobility aids, what you actually get is a different thing altogether, as it is up to the individual councils.

Sadly it is run on a cost cutting model, so they do not look for the best for you and your situation, instead they will look for something that gives the minimum and is cheap.

This is not a good way to run a support service, it results in strange rules, and for example I had some facts to back up my appeal against the hand bike decision.

I pointed out to them the health benefits of being able to effienctly move yourself around in the wheelchair with a manual hand bike attachment.

I was informed that medical reasons were not grounds for appeal, that they looked at it purely on administrative reasons and I had none so my appeal was dismissed.

At the RCA I also noticed that week after week people were being given the same type of wheelchair, seems one size fitted all.

Obviously they had bought in bulk and were giving them to everyone who needed a wheelchair, even
Though they were big, clumsy and heavy.

Spoke to two people, she unhappy in a chair too heavy for her to move independently in; he with heart problems and asthma had to push her, he had to sit every few meters, which is not possible everywhere in Amsterdam.

Or there would be huge delays getting replacement bits for a wheelchair, met one man at the RCA, who needed new wheel guards so he did not get splattered every time it rained, he had been waiting for a year.

He had many appointments with an advisor from Welzorg and each time the wheel guard was not ok, it would generally not be the right size, eventually a year later he was the proud recipient of a set of cheap plastic wheel guards that kept him dry.

In Amsterdam it is difficult to get about in a wheelchair, the accessibility law means all premises open to the public like shops and cafes and restaurants are accessible.

Here you can still see new premises that have big thresholds and so no way you can get inside without a lot of effort and assistance.

The City Council should refuse shops and other business their operating licence until their premises are accessible to all.

The City Council bought new trams; they spent millions, just before the new law on accessibility came in here in Europe.

The trams do not facilitate smooth access, instead the conductor has to bring out a two small metal ramps and try to get it set up so the prospective wheelchair passenger can roll on.

Sadly the tram stops do not provide enough room for this manoeuvre and tram conductors were endangering their health trying to lift people sideways onto the ramp.

That means that trams are not accessible and if you do manage to get in there is a small space which you share with bicycles and prams.

The Government has done similar with he trains, buying trains that are inaccessible without the assistance of the train conductor.

You have to phone and book in advance inclusive of your return journey and station you will arrive and leave from.

The trains should be accessible now but somehow they have managed to wriggle out of conforming to the law, until they can buy new rolling stock, think aprox. in 2020.

I have noticed that there are alot of incompetent people out there masquerading as people who care and they are frittering away money that was earmarked for mobility aids and adapted housing.

Shame that the people that are good and do put your interests first are not those involved in advising the Council as to what you need.

They are using their skills to help and support people who are vulnerable because of sickness and progressive diseases.

They are the jewels you meet as you progress through the labyrinth that is Social Care.

Thursday, June 04, 2009











Really hope that on June 10 when Ton, the nurse from the RCA is here with Doctor Stolwijk that they will have some good news for us.

Starting to get very concerned about the strange posture that my body has adopted.

Really hoping that despite this I will be able to go outside as I am getting quite fed up with spending so much time in one room.

It is abit like being locked up, luckily for me I am not in solitary confinement not with my darling Richie here with me and visits from friends.

Nevertheless this would not have happened if Arca ( advisors to Amsterdam City Council)had actually listened to me when I told them time and again that I could not sit properly in the power chair.

This is now in the past and I actually do not want to talk about it, apart from to make a point to the relevant people that their penny pinching has been very expensive for me.

I have lost 9 months of my life that I will never regain.

Additionally being confined to bed has exacerbated my condition and given me some new problems as my body has become even more sensitive because of the prolonged lying in bed.

The muscles in my back are incredibly weak and of course make it more difficult for me to sit well.

My posture can best be described as sitting like a crooked banana, my hips go one way and the top of my body the other.

With abit of a corkscrew effect round the waist, this tips me slightly to the right and my left side tries to keep the balance which results in a strained left shoulder.

All of this has given me a lot of extra pain and discomfort; really hope that this year Richie and I with the support of a good friend will do our best to get a well adjusted power chair so that I can go out.

Really want to go out and enjoy being outside feeling the air and hopefully this can happen before not too long.

Would love to enjoy the summer and see something of this lovely city, shall do my best to remain positive and optimistic.

Not easy to do but will do my best to remain optimistic although at times that is difficult to do.

Shall stay as optimistic as possible first take the baclofen and drink sufficient water and get on with the day.