Sugar Festival and the end of Ramadam and Good Neighbours.

Gustav Klimt.

Can't believe it is Monday already, seems to come round even faster every week, maybe it is because I want it to be time to go out.

What seemed like ages until mid October is know pretty close by and very achievable without stress.

This morning got woken up by the strangest spasms in my little fingers felt like they were electrified.

My little finger twitched furiously and hurt like hell, it was a rotten awakening, helpless to do anything to make it ease up.

Did my best to relax and drift back off to sleep but could not as the fingers kept twitching and hurting.

Until Richie fetched some THC for me which helped me sleep again, bliss I drifted off happily to sleep.

A few hours later a leg spasm and children playing football outside woke me up again, this time I wanted to wake up.

Mathilde my wonderful physical therapist has been, we did 30 minutes of intensive exercises, including extra neck exercises as per Ludwine's instructions last Thursday.

I told Mathilde, all about the modelling session with Elwyn from Summit and she was very interested to hear all about it.

She was very impressed with Ludwine's phone call to her on Thursday, so am I, was pleased that Ludwine thought of all aspects of my sitting again.

Ludwine is an impressive woman, she is excellent at her job, and does it so well, it is nice to meet someone like her who is so involved and caring about the people she deals with.

Last night Rachida, our beautiful neighbour brought me some of her freshly made cookies and pastries.

They are delicious, somehow I managed to not eat too many, so have half left over for later, they are just the right amount of honey syrup and sesame seeds.

Delicious Moroccan delicacies, Rachida had lots of visitors as they were happily celebrating the Sugar Festival and the end of Ramadan.

Rachida brings us a plate full of her delicious cookies and pastries every Sugar Festival since we moved here in 2007.

Good to have neighbours that you know and who come by to visit, really glad we have that here.

Well it is beautiful sunny weather today with blue sky and it is warm, have seen some people who are in shorts and small t-shirts, summer is really back again.

I am going to post this and find some pictures on the web, have decided to find pictures by Gustav Klimt.

Have a pleasant day.

Life's pearls.

What a different day it is today, started off really lovely with gorgeous sunshine but since then its got more cloudy and overcast and now there is a grey ceiling over the city.

Now I really believe spring is on its way as we are getting the grey ceiling days oh well who cares when we have sun in our hearts.

Hope Amelia is getting some sun in Devon and her pain is getting less, be brilliant if it were getting better really hope so.

Please visit her at http://talesoflifewithmultiplesclerosis.blogspot.com/2009/03/strange-numbness-but-its-painful.html

Been thinking about her lots, if only we could achieve things by the power of thinking we would all be well.

Mind over matter sadly does not cure us of this horrible disease its a shame as we all have to assert ourselves daily against MS.

Nothing can really prepare you for this and maybe thats ok, would I have wanted to know what was going to happen to me.

Would I have wanted to know that I would end up having to be in bed for over 6 months its now 7 months in bed.

All I can do with my hands is type and eat and drink all very important and actually very pleased that I can now use my left indexfinger to type at the same time as the right index finger.

I do arm exercises when the fysio is here I use weights

Have not been able to sit upright since I am in bed could not do it at first as the sore was too deep to permit me doing that.

So have been sitting abit slumped which makes eating and drinking difficult.

Been having to lie around is not so easy really aware that its not good fo0r the body all the more reason to do the arm and shoulder exercises.

Very important that Richie massages and moves my legs every morning and the fysio comes twice a week and that every night I use the motomed.

An excellent machine keeps the blood ciculating,stops feet and legs getting swollen and promotes healing and is good for my spirits.

http://www.motomed.com/

Difficult to stay optimistic and cheerful now I can do so little but there is no choice asa to do anything else would be so very bad for me.

Being cheerful and opimistic and enjoying what I have is the only way I can go the other option would be so very bad for me.

It would kill me so really my choice has been for myself,purely selfish and in my own interest.

Its also very good for Richie and I and makes the time that we have so mcu better, this does not mean that I don't have down days cos I do but thats life in all its beauty.

Love life perhaps even more than I did hope that I can keep feeling like this and keep enjoying my life despite the shit.

Heres to the pearls of life.

Here's to life.

Not such a nice day as yesterday today it’s grey and raining, well drizzle hours of drizzle.

Not an inspiring day not like yesterday but it is a day for doing things just a shame no sun.

Yesterday was pretty upset that Ton, the nurse did not have a good report about the sore, he measures it every time.

Was so hoping for that special birthday present for coming Tuesday just have to get off it now and pick myself back up again.

No point crying before I need to cry but it did knock me for six yesterday will have to be patient and wait which I find so very difficult to do.

Oh well perhaps its good news next time Ton visits let’s hope so and in the meantime I am going to enjoy today sun or no sun.

First I have my fysio session where I will do lots of arm exercises and then Mathilde moves and massages my arms.

After the fysio session Anne and Cecile will visit, Cecile will bring a bottle of prosecco left over from her birthday party.

We will drink a toast to life and friendship.

Fysio today.

Slept well again last night only problem woke up too early and could not get back to sleep again.

Was in too much pain to sleep properly again tried my best to stop myself moaning which is not easy to do.

Eventually did manage to slip back into a pleasant dream which was great as I could put off being totally awake.

Nice being in that in between world between sleep and being awake, had to admit that I was awake when Spike crept into the room.

Did my arm exercises and then the day could begin it was Monday and Monday was fysio day.

Its good that I get fysio twice a week as it really is good for me keeps my muscles loose.

First Mathilde gets me to do some exercises some with weights and some without after that she moves my arms and massages them as well.

Afterwards its great feeling very relaxed which sets me up until Thursday and my second fysio session.