Was contacted by Linda Elsegoed on Facebook and invited to join the LDN group.
Had a look for information about LDN and discussed it with Richie after which I joined the LDN group and am keen to find out more.
This is the first drug that I have heard of for the treatment of PPMS, am amazed that I have never heard of it before now.
It seems to have been around for awhile now, it started off being used to neutralise drug overdoses.
Since then, it has been successfully used for other diseases MS being one of these.
I am very interested in LDN, understand it is administered orally in capsule or powder form.
Wonder what the side effects are?
This drug is very interesting but because there have been no drug trials/tests there seems to be only personal testaments not scientific facts.
Wonder why the neurologists I saw did not mention this course of treatment, they told me that there was not treatment possible for PPMS.
Is this is because it is not in patented at the moment, to any one drug company, so no one wants to spend money on doing tests/trials on a drug that they do not have the patent on.
From what Richie tells me he has not found anything that says LDN causes any harm, there does seem to be evidence that LDN will stop pain relief from opiates.
The way I feel right now about the quick progression of my MS, is that I do not have anything to lose by trying this drug, this is made more attractive by the fact that it is an oral drug.
Would very much appreciate other peoples input about LDN,
Have sent an e-mail to my general practitioner Dr. Wijngaarden for her feedback.
As well as to two neurologist Dr Professor Polman from the Vrije Universitieits Ziekenhuis Amsterdam and Dr. Kalkens from The Onze Lieve Vrouwen Gasthuis Ziekenhuis, Amsterdam.
I am interested in their views about LDN, but even more interested in the views of other people that I know with MS.
Have you tried it and what did it do for you, please let me know, your feedback is much appreciated.
Links to LDN:
http://www.ldnresearchtrust.org/
http://forum.ldnresearchtrust.org/index.php?/topic/982-2008-ldn-fact-sheet/
http://forum.ldnresearchtrust.org/index.php?/topic/1304-linda-elsegoods-story-2009/
http://www.ldnresearchtrustfiles.co.uk/docs/November_2009.pdf
http://www.lowdosenaltrexone.org/
http://www.lowdosenaltrexone.org/index.htm#What_is_low_dose_naltrexone
http://glasgowldn2009.com/category/conference-sessions/
