Bryan Charnley.
http://en.wikipedia.org/wiki/Bryan_Charnley
Woke up in lots of discomfort this morning, Richie discovered there had been a tiny kink in my catheter tube, which began to flow after he had moved my position.
After that was successfully resolved and my catheter bag filled up I found that I could do my arm exercises much easier than yesterday.
Brilliant noticing that it’s easier today, better than only noticing progression of my MS.
Listing all the things that are no longer possible for me to do is a pointless task, it only causes depression.
This is a symptom with MS, and no wonder it’s depressing, its not easy to be diagnosed with an incurable disease.
The odd thing is that despite knowing it was incurable I still was shocked to find there was really no cure.
Very strange to know and yet be so shocked, be left feeling so bereft, I wonder if others have felt the same way.
I think that I can’t be the only one, I am sure others will recognise how I feel knowing its incurable, so there is no chance of getting better.
That is the real shocker that I can’t get better and nobody gets better, that can’t be right, not after being told everything can be fixed, to finding out this was not possible.
