Still Have Pride In My Appearance.

Roberto Matta.

http://en.wikipedia.org/wiki/Roberto_Matta 

It is definitely getting cooler now as summer is being replaced by autumn weather.

Which I would enjoy more if I could go outside, even better if I could be mobile then I would have no problems with it getting cooler.

Because the weather has changed, I have to wear a light jacket or a zipped up top to keep me comfortably warm.

Clothes are not easy for me any more because of my increased disability, which makes some items of clothing difficult to get on me.

There is a real shame especially as I can no longer where several of my favourite T-shirts anymore.

Before I became so handicapped and sensitive to temperature I used to love wearing thin sleeveless T-shirts which I can't wear any more.

I also can't wear anything that is made out of lycra, as I can't adjust it correctly sitting in a wheelchair or in bed.

Lycra garments are only good worn by people who are mobile; they are no good for wheelchair users as they ride up and do not sit nicely.

Which is a real shame because these days so many items of clothing are made either in Lycra or containing it.

The other item of clothing, that I could not wear for ages until Richie worked out how to adapt my clothing, were denim jeans.

In fact most trousers were not suitable in a wheelchair, as sitting down causes the waistband to go too far under the waist which is not a pleasant sensation.

Now all trousers, zipped up tops, jackets get adapted by our friend Anja, so that they don't get ripped up being put on in the shower chair.

Most garments do not last very long when having to be pulled on over the hard plastic surface of the shower chair.

Adapting my clothes has extended how long they will last for, and carrying out the adaptations ourselves is much cheaper than buying from disabled clothing websites.

As well as the clothes being more attractive than the majority of clothing supposedly designed for handicapped people.

It is a shame that the majority of companies who sell clothing for handicapped people do not have real empathy with their clients.

If they did they would realise that being handicapped does not mean no longer wanting to put on attractive clothing.

I still enjoy wearing nice things, which includes using perfume, wearing earrings, necklaces and rings all things that I still love.

Still Optimistic Despite The MS.

 

“Ten Blue Eyes”
New raw art, surrealism, expressionism.
Kazuya Akimoto Art Museum.

Had a pleasant day yesterday even though I was in quite alot of pain, my hands and arms cramping up and locking together woke me up, together with a big spasm.

Funny how I have got used to living with pain, glad it does not stop me being myself and being cheerful and optimistic.

But it does give me a lot to struggle against in order to be able to be myself which is always positive.

Guess it is not too difficult to do because I am very cheerful and optimistic by nature; nothing seems to change that which is brilliant.

Good to see that even this horrible disease that has taken me on such a horrible trip where around every corner there is yet another nasty surprise, has not diminished me.

Being myself is very important for me and now that I am wearing earrings and brooches and necklaces again, I feel even more me.

I enjoy wearing my pretty sparkly things again and getting Richie to spray me with perfume, have to stock up on some new ones soon as I am down to my last two bottles.

The Lolita Lempicka and Jean Paul Gaultier are the ones I still have, my Christian Dior three Poisons perfumes and the Kylie Minogue and Roma by Laura Baggio and the Angel are all finished as is the gorgeous Escada.

I enjoy perfume and my jewellery too much to let MS stop me enjoying them; they are so much part of me now that when I do not wear them it feels very strange.

For the first year in bed I did not wear any jewellery or perfume which contributed to making me quite depressed.

Since end of April this year I have been able to sit intermittently in my wheelchair and started putting on earring and perfume which really helped my mood enormously.

Now I wear them everyday and feel truly me once more and that is good despite the MS.