I Will Get The Hang Of It Soon.

Ubu Imperator.
Max Ernst.
http://en.wikipedia.org/wiki/Max_Ernst

Today has been one of those days, started at 08.00 with my wheelchair being collected so the new steering could be installed.

Richie took his bike off for the gears to be mended and came back and not long after he hoisted me out of bed.

After Richie gave me a great shower and I was dressed, we were expecting Annelies advisor from the council and Harm from Welzorg to arrive.

Just as I was brushing my teeth the phone rang and it was Annelies telling me they would be a little late, they arrived an hour later.

When they got here with the wheelchair, Richie put me in it and I tried to steer with the steering right in front of me on a Perspex table attached to th wheelchair.

I found it very difficult to steer at first and was not keen at all about it, worried me for abit, could not work out how or why it felt so bad.

Then Richie pointed out that as there were no arm supports, I had to hold my shoulders, this was causing me a lot of stress and pain.

This will be solved by the steering mechanism being installed into my own Perspex wheelchair table with arm supports.

I will test it out tomorrow when I have to go to the hospital for the first catheter change, which is quite handy as it will give me an opportunity to test the steering.

This evening I am very tired after this afternoon and getting so upset by the new steering,hope I will get the hang of it soon, sure I will.

Take My Inspiration From Our Dogs.

The Temptation by Danny Sillada.


http://en.wikipedia.org/wiki/Danny_Sillada

Yesterday I took a 2 mg diazepam 30 minutes before Richie transferred me to the wheelchair from the shower chair.

After organising my posture and making the necessary adjustments, Richie sprayed me with perfume and put in my choice of earrings.

Then I tried to hold the joystick and turn the wheelchair around and leave the room, and it worked.

Was a most glorious feeling to feel myself steering the wheelchair with no problems into the front room.

Happy days indeed, felt very good about that, very good indeed, so today will try without the diazepam and see what that is like.

If it is too difficult then I may have to take 2 mg of diazepam to facilitate my steering, certainly will take it this Thursday, for the hospital appointment, when I have to get into the lift and down to the mobility bus and into the bus.

Also on the 17 th to the Drive by Truckers gig, I sent them a mail telling them I would be at their concert and my worries that being in a wheelchair I might not see them well.

Got a lovely response from Jenn, the bass player, who gave me the name of their tour manager and sound man, for in case we needed assistance at the gig to see them properly.

Really nice of her to respond am very much looking forward to the gig next week Wednesday, the one bus trip I am looking forward to 100%.

The one good thing that is happening, after the sadness of Richie’s father dying weekend before last.

Sadly Spike’s condition is getting worse, we hope the clinic in Utrecht can help if not we will have to make a difficult decision; just thinking about it has made us both cry alot today.

We can’t leave our little chum to deteriorate, especially if there is no prospect of a recovery and only of him getting worse and being in pain.

So we will have to let the vet put our little friend to sleep, that will be very difficult for us both and for Marleen too who will miss her little pack mate.

Will miss him so much, he is such a lovely little fellow, he has been such a lovely playmate, and m ‘big’ protector, our Spike.

Also the progression of my MS is not good news right now and it is a cold and grey November day too.

For now we are going to stay hopeful and optimistic and enjoy Spike’s company and face up to whatever needs facing when it actually happens.

Going to take my inspiration from our dogs and live for the moment, the here and now.

Better To Stay Cool.

Landscape Near Dresden 1910

Erich Heckel.

http://en.wikipedia.org/wiki/Erich_Heckel

Today was not the day I had been expecting, Richie got me up very early and had me showered and dressed and in the wheelchair by 09.10.

The mobility bus phoned at 09.13 that he was on his way; he arrived at 09.25 as Richie was struggling to get my fleece jacket, winter jacket and leg protector/leg bag on, we said we will be downstairs in 5 minutes..

Just as he had done it, the mobility bus drove off at 09.30 and without calling us otherwise I would have said we were just coming down.

Tried to organise another mobility bus but they could only send one at 10.30 which was the time of my appointment.

So it stopped there for today, now I have a new hospital appointment for next week Thursday at 11 am.

We have both been a touch shattered by this morning’s mobility bus drama, hopefully next week I will actually get there.

Feel very tired now and so is Richie, expect it was all the adrenaline for the appointment this morning.

One good thing was that despite the shock and disappointment of this morning I did not get angry and waste any energy on getting upset.

Much better to do what I did which was not let it get to me too much and drain my energy, it was better to keep cool.