Find it difficult to deal with questions such as:
What does the doctor say?
In my case nothing as they do not know and can not make a prognosis.
Or are you any better?
No and I won't be better.
Or about the wound when do the doctors think it will heal?
They have no idea and say slowly.
It's very worrying to have an illness where doctors can not help me which is weird as we are all brought up to think the doctors can always help.
Just not with something like primary progressive MS then doctors and patients have to gamble.
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