Showing posts with label MS symptoms. Show all posts
Showing posts with label MS symptoms. Show all posts

Friday, July 03, 2009








This heat is really killing me today have had a fan right next to me all day and still was dissolved in a puddle of sweat.

Really have felt very ill today and couldn't hardly lift my head from the pillow this morning.

All my MS symptoms were exagerated through this extreme heat.

Then it got even hotter this afternoon and it seemed like all activity had ceased and that I would not be doing much for the duration of this heatwave.

The thought of being so incapacitated for the rest of the summer is real depressing.

Around 7 this evening was bursting into flame and felt like tearing my skin off that was how bad I felt.

Luckily once Richie put some more cool packs around me I started to feel abit of relief and then luckily a breeze started up and finally I cooled down and could eat dinner.

Really happy that it finally got cooler tonight and I could relax mind you it was midnight when that happened.

Hope we all have a better day tomorrow.

Monday, June 29, 2009






Tomato and potato plants on balcony.


This heat is knocking me out and making all the aches and pains more intense, it is because it is hot humid weather.

If only it were hot and dry think it would be easier and better to cope with, but hot and humid intensifies the MS symptoms.

Shame as I used to love it being hot, the last few days have been agony and at night it gets very late before we can get some relief from the all enveloping sticky heat.

Just got interrupted so have totally lost what I was going to write about which is probably just as well.

Glad I realised on Saturday that it was the sticky heat that was getting to me and not that I had totally inexplicably lost the plot big time.

One of the things I have never been too fond of has been an over concentration on every aspect of every moment in time always thought that over analysing everything meant you would miss out on the moment itself.

Now I realise that there is a middle way that it is good to examine and evaluate what you do but not good to get so stuck in looking at one aspect you do not see more of the whole picture.

In fact you can get so involved in the detail that you can forget anything else including yourself.

The fast progression of the MS makes it difficult for me to nurture good feelings about myself and has meant that my self image has been to hell and back.

Important to have one and one that is not just being an invalid, mind you as invalids go I am well loved and cared for and well nourished.

I am reasonably cheerful, love teasing the dogs gently, mostly pretending that I have thrown the ball or toy.

Love my darling Richie so vey much in awhile he will be in here hoisting me out of
bed and under the shower.

Looking forward to that very much and hopefully the shower will refresh me even if only briefly.

Later when I am back in bed I will seek some mental refreshment and stimulation and information by reading some the blogs I follow.

Recently I have come into contact with two people from Trinidad, Sita is in Ontario and Rhapsody Phoenix in Toronto.

http://sitahenderson.blogspot.com/

Trinidadian recipes.
http://www.trinigourmet.com/


http://rappingonamelody.blogspot.com/


Have had the pleasure of bonding with Sita about the pleasure of Trinidad food, we both were remembering the smell of hops bread.

Shame you can not describe a smell, all I can say is it is a unique smell which I can not explain.

The smell of Hops bread is something another Trini will understand very well indeed, a lasting memory of mornings at home in Cascade, Port of Spain and my dad coming back form getting the morning rolls.

Going to leave a supportive message on Amelia’s blog she has her very first infusion of Tysabri tomorrow.

http://talesoflifewithmultiplesclerosis.blogspot.com/


Wonder how Kimberly is doing over at http://myjourneywithms-kimberly.blogspot.com/


And how Rae http://myweathervane.blogspot.com/

And JC http://jcatmom.blogspot.com/

And Anne http://disablednotdead-anne3.blogspot.com/ are doing

And check out her new blog http://vitaminsmineralssupplementsdiets-ohmy.blogspot.com/

As well as Stephany http://bipolarsoupkitchen-stephany.blogspot.com/

And Celeste Maia at http://maiasintothemoonlight.blogspot.com/

And Diane http://dj-astellarlife.blogspot.com/

And Lille Diane

http://www.woodstocklily.com/

And Rain http://rain-mountain-mamma.blogspot.com/


And Tara at http://livingdaytodaywithmultiplesclerosis.blogspot.com/

And Mort at

http://mortonlake-caring-and-sharing.blogspot.com/


Well guess it is time to stop and get shnowered r i ght away.

After the shower will post the photos, the pictures that I will post today are our tomato and potato plants, the potato is in the square box.

Hope you are all having a good day..