Great Sitting Again In My Wheelchair.

Hibiscus and Orchids in my bedroom.


Today Richie confirmed that the skin had healed so I wanted to sit immediately in my wheelchair.

Which I did for 40 wonderful minutes; while I did my leg exercises with the Motomed, it was great sitting in the wheelchair.

Much better than desperately trying to sit up in the shower chair, which causes enormous strain to my arms and shoulders and is very painful afterwards.

While I was doing my exercises we talked to our general practitioner, Doctor van Wijngaarden who popped by to see me.

She waved happily at me as she came down the road on her bicycle, and expressed her delight at seeing me out of bed for the first time since 2008..

She was very happy to see me sitting again, as she said she had been very concerned as to whether I would be able to sit again after such a long time lying down.

It was excellent being n the front room, it looks great now Richie has moved the table closer to the kitchen area.

It gives me more room to move, my Motomed is at the window by Marlene’s bed, she likes it too.

Great looking up both the roads and enjoying the new plants Richie bought yesterday on th e window ledges.

Brilliant that my skin has healed again so quick, just like Ton said, sadly I forgot to talk to Ton on Wednesday about the length of the time that I can sit.

Remembered this yesterday afternoon but only asked if I had to build up the sitting time again.

Ton mailed back yes and then must have gone home as I could not get him either by mail or on the phone to ask how long I could start sitting for.

It will be very tempting to go out tomorrow to the market especially if the weather is good but I will build up the time again.

Guess we will play it safe, feel abit disappointed that I can't go to the market this Saturday as I so want to go there as soon as I can.

Richie says that as I sat for 40 minutes with no sign of any problems that I could try double tomorrow or maybe even one hour and thirty minutes

And then if there is no signs of redness or damage gradually increase it so that I should be able to get there by Thursday next week.

I will check with Ton on Wednesday just to make sure, but think that seeing as I had recently built up my sitting time to four hours that this will be possible to achieve by next week.

Feeling very happy today now I have had forty minutes in my electric wheelchair.

New catheter.

Slept well again last night despite the doctor's appointment today, our GP is coming round to change the catheter at 12.30.

As soon as I woke up this morning I was moaning with pain which Richie remedied with a bag of THC and that helped me off to dreamland again.

Sadly could not get the doctor’s visit out of my head and had to finally acknowledge that it worries me.

And yet it is not worrying Dr. van Wijngaarden is a very good doctor who knows what she is doing and does it well.

It is not a painful procedure and yet it is not me favourite thing, would love to phone and cancel arrange another date but that would only postpone it to another date.

Then I would get to fret and worry and even panic slightly all over again.

No won't do that just have to let it happen and once it is done I won't have to think about it for another two months.

Instead of concentrating on the doctor’s visit I will think about my dear friend Anja who will be visiting this afternoon which is a nicer prospect than the doctor.

12.30 the doctor was here and before I knew it she had installed the new catheter and it was all done and dusted, what a relief!

The sun is shining brightly and Richie tells me the weather is mild so will be able to open the windows in a minute and enjoy the balmy air wafting in through the windows

What a way to hear diagnosis!!!

Still can't believe it but when I saw the neurologist for the MRI results in July 2006 we waited for one and a half hours and then in five minutes were told that I had primary progressive MS and not to look it up on the internet.

I should wait til the next appointment when he would give me all the information on MS. Within minutes we were back in the hall, stunned, shocked and both crying.

The neurologist had not shown a shred of sympathy or compassion nothing
Months later the same 'kindly' doctor gave me a ten years out of date book to read.

Luckily we had looked it up right away and had not waited for the doc to tell us.

Cheek of the man telling me to stay ignorant, a very unpleasant man who was publically even nasty to his own colleagues.

Luckily I was sent to another hospital for a second opinion, finally saw the Professor
in December 2006 and got sent for another set of MRI's in March 2007 they were not ok and had to redone finally happened in June and after various hitches the good Professor told me in the autumn that I had abit of MS abit?!

I could not walk and already needed carers to wash and dress me and help me go to the toilet. A bit of MS!!!!!!

In January 2008 saw the Professor for the last time he was obviously not a happy man as he could tell me nothing about the course of my MS.

Then I had to see the first neuro again last April, by then I was fulltime in a wheelchair and he actually asked me how I had managed to get into a wheelchair so quickly!

Don't see any neurologists anymore as there are no drugs for me and they can't make a diagnosis something that makes them nervous and unhappy.

My GP is good which is a bonus, she is very supportive of me and Richie and it's good to be able to talk with her.

And Richie looks after me wonderfully well he keeps me happy despite being in bed since 21 August last year because of a nasty pressure sore.