A Spring Day in November.

Despite a huge problem with waves of sweating last night I did manage to get off to sleep without lying awake for hours.

Before I did drift off I had to keep placing my arms over the duvet to reduce the heat somewhat.

Of course as soon as my arms were on top of the duvet, I would feel how cold it was and my temperature would plunge rapidly and I would have to get my arms back under the covers as quickly as possible.

The good thing was that despite the sweating, which was horrid, sweat was dribbling down my neck and causing my neck and ears to feel sore.

Glad I went to sleep when I did as otherwise I am sure I would have started to scratch the irritated skin.

Slept well but again got woken up by a spasm when I must have made a tiny movement with one of my hands.

Hate the way being awake makes me so aware of every bit of my body that hurts, this morning I was instantly boiling hot too and dripping with sweat.

Richie heard me and got me some THC which let me drift off into sleep again, lovely; a few extra hours were just what I needed.

After a couple hours I woke up again and again the pains were all awake too and again I was bathed in sweat.

I distracted myself with doing my arm exercises, they went very well and the THC seemed to help me relax plus I managed to use the handle above the bed to get my shoulders off the mattress.

Important for me that I do the arm exercises every day, am convinced that the exercises have given me longer use of my hands and arms.

I am hoping to get some feedback from my doctor and the neurologists this week about LDN. One neurologist promised to telephone appointment, so far he has not phoned.

The other one Dr. Prof. Polman from the V.U, Amsterdam has not even sent a read receipt, probably too busy being an MS expert.

I do recall that despite being a well known expert on MS he had no suggestions for a treatment plan for me in 2008.

Our doctor, our GP, will be here on Monday to change the catheter so I will use the opportunity to talk to her about LDN.

I think that Dagma will have more chance of getting some feedback from the neurologists than I have had so far.

It is a pleasant sunny day; Richie says it feels spring like today, the calm he reckons before the next outburst of rain and high winds.

Have a good day.

This morning woke up quite nicely then got boiling hot and flung the duvet open and seemed to have drifted back off to sleep.

The pain became noticeable as soon as I was properly awake but our morning routine soon keeps it at bay.

The leg massage, arm exercises and baclofen and THC followed by breakfast seems to help each day.

Finally worked out why I had so little mail recently somehow the password got changed and all mail stayed in webmail.

So corrected password and received 688 mails!

Amongst them lots of birthday cards and mails full of good wishes which was sweet as today was like a second birthday!

No night sweats yippee!

Had a good nights sleep last night and did not get woken up by a night sweat which was brilliant.

The mosquito net was hung up expertly by Richie and it looks good too which is great.

Perhaps there are no mosquito’s around right now but it is good to be prepared.

Last year we thought it was still too early at the beginning of March for mossies only to be proved very wrong indeed.

Was interesting to get everyone’s feedback about sweating seems it is a common problem for MSers.

So I guess like with so much of the MS related stuff we have to try to cope as we best can, and we do.

Night sweats...........

Last night started off good went to sleep no problem then woke up probably only a few hours later hot and panting and totally sweaty.

It took quite awhile for me to cool off enough to get back to sleep again.

Really horrible experiencing this, have read that there are many other MSers who experience the same thing.

Seems our temperature just goes up and down just like that without there necessarily being a noticeable reason.

It is quite disturbing especially when you find yourself like I was last night yanked out of a deep slumber.

Would like to hear other people's experiences and find out if they have any advice as to how to deal with it.

Richie is going to hang up the mosquito net today so we can start opening the window again at night.

I am curious whether this will stop the night sweats, will see tomorrow.

My fysio is here so off for 30 minutes of hard work which should see me very relaxed afterwards.

Richie hung my new mosquito net later on so the window will be open tonight and there is no danger of being bitten what bliss!