Saturday, November 21, 2009

A Spring Day in November.

Despite a huge problem with waves of sweating last night I did manage to get off to sleep without lying awake for hours.

Before I did drift off I had to keep placing my arms over the duvet to reduce the heat somewhat.

Of course as soon as my arms were on top of the duvet, I would feel how cold it was and my temperature would plunge rapidly and I would have to get my arms back under the covers as quickly as possible.

The good thing was that despite the sweating, which was horrid, sweat was dribbling down my neck and causing my neck and ears to feel sore.

Glad I went to sleep when I did as otherwise I am sure I would have started to scratch the irritated skin.

Slept well but again got woken up by a spasm when I must have made a tiny movement with one of my hands.

Hate the way being awake makes me so aware of every bit of my body that hurts, this morning I was instantly boiling hot too and dripping with sweat.

Richie heard me and got me some THC which let me drift off into sleep again, lovely; a few extra hours were just what I needed.

After a couple hours I woke up again and again the pains were all awake too and again I was bathed in sweat.

I distracted myself with doing my arm exercises, they went very well and the THC seemed to help me relax plus I managed to use the handle above the bed to get my shoulders off the mattress.

Important for me that I do the arm exercises every day, am convinced that the exercises have given me longer use of my hands and arms.

I am hoping to get some feedback from my doctor and the neurologists this week about LDN. One neurologist promised to telephone appointment, so far he has not phoned.

The other one Dr. Prof. Polman from the V.U, Amsterdam has not even sent a read receipt, probably too busy being an MS expert.

I do recall that despite being a well known expert on MS he had no suggestions for a treatment plan for me in 2008.

Our doctor, our GP, will be here on Monday to change the catheter so I will use the opportunity to talk to her about LDN.

I think that Dagma will have more chance of getting some feedback from the neurologists than I have had so far.

It is a pleasant sunny day; Richie says it feels spring like today, the calm he reckons before the next outburst of rain and high winds.

Have a good day.


Taxingwoman said...

Hi! Herrad
We are having the same weather here. I'm not use to rain in November, but I'm happy to not have to use the furnace.
I go through that crazy pantomime with the sweats too. Take the blankets off and I get cold, put them back on and I boil!

Have a nice evening

Have Myelin? said...

I hope you hear from someone about LDN. I know they are busy but we are their patients! It is frustrating...

Today it is a cold breezy day. I hope I can get out and take some photos without spasms.

I hope you have a good day, Herrad.

Herrad said...

Hi Carole,
Thanks for coming by and for your comment, sweats are horrid only really started getting them recently and now its happens all day too.

Hi Sherry,
Thanks for coming by, have fun with taking photos today.
Its an ok day despite the pain.

Thanks both of you for coming by.
Have a good afternoon and evening.

Nancy said...

I am hoping to get some feedback from my doctor and the neurologists this week about LDN. One neurologist promised to telephone appointment, so far he has not phoned.

The other one Dr. Prof. Polman from the V.U, Amsterdam has not even sent a read receipt, probably too busy being an MS expert.

This is the stuff that drives me crazy! If they are such experts and care so much about their patients couldn't they have their nurse call at least?

Feel good today, Herrod. Thinking of you.

Herrad said...

Hi Nancy,
Thanks for coming by and leaving your comment.
Doctors often forget us.
I am doing my best to feel good but feeling so sweaty all the time is horrid.
Have a good afternoon/evening.

Peace Be With You said...

Herrad, are the sweats MS related? I'm not trying to pry but I'm not familiar with this symptom if it's MS-related.

Herrad said...

Hi Judy,
Thanks for coming by, good to see your comment.
I think the sweats are MS related, ever since the diagnosis when my symptoms got worse my body temperature has been deregulated.
Have a good evening and day tomorrow.

Travelogue for the Universe said...

Hi Herrad,
Sweats can be from nerves which go haywire or from a UTI or other occult infection. Be careful to check temp too.Hope you have a great day.
We went and got socks. I will blog...Love, Mary Gerdt

Anonymous said...

Dear Herrad,
seems as if there's spring all over the place, as the last couple of days were just alike and temp. not below 18 during midday.
Nearly two months to go until my students have to sit for their exam - hopefully not too much in sweat.
A wonderful Sunday for you all.

Herrad said...

Hi Mary,
Thanks for coming by , also for the thought that it could be a uti.
It has been a good day.
Even better for Richie and I once Scotland beat Australia at Rugby.
Hope your Saturday was pleasant.

Hi Robert,
Nice to see your comment, thanks for coming by.
A spring day before it gets darker and the days shorter, it is a nice boost for us.
Have a good Sunday.

Rei said...

Hi Herrad! I'm sorry to hear that you're not sleeping well and having these problems with the night sweats... I have similar problems with sweating during sleep and it's absolutely horrible. Good to hear that a little THC helps, though! Hope you feel a little better in the coming days...


Joan said...

It is warm at night just now that is now helping the night sweats I suffer too probably for a different reason but they do keep you awake for long periods of the night. Itis so annoying to have broken sleep every night but I have got used to it after many years. Arms out arms in feet out and in that the usual routine. Hope it stops for you soon. Love Joan

Anonymous said...

Hi Herrad! I hope you hear soon about the LDN. The weather has been in the 10's over here, it's very nice, I can even handle the wind now....only took 2 months for me to get used to it!, that's the secret weapon!!
Hope you're having a nice Sunday. The Olympic Torch relay is passing through town this evening and there is a big celebration, with drums and piping, fireworks and music, so I'll be attending that tonight! Scary thing, me with the humans, lol...but I don't want to miss this once in a lifetime chance to see the Olympic Torch! I hope I can get great photos, it'll be dark by then, but I'll try! :)

Rhapsody B. said...

Blessings Herrad:

I hope things are great with you. I was thinking about you when i was watching a program here called W5. They had some really exciting news on MS. The piece is called The Liberation Treatment: A whole new approach to MS. So here is the link, I hope you find it interesting.

have a great week.....please give my regards to your husband.

Herrad said...

Hi Rei,
Thanks for coming by, it is good to see your comment.
Waking up bathed in sweat is the pits, really hate it too.
Life without thc would be horrible, would have to be zonked on painkillers.
Last night was better only woke up once thinking I was in a pool of sweat.
Hope you slept well.

Hi Joan,
Thanks for your visit and comment.
I remember having night sweats before MS now its worse as I can not move anything but my arms which I seem to move all night.

Hi Rain,
Thanks for your visit too,nice to see your comment.
10 degrees by the sea sounds good.
Hats and scarfs and gloves must be crucial on PEI.
The torch ceremony sounds good, hope you enjoy it, I guess it is going round the world on its way to England for 2012
Look forward to your photos.

Thanks everyone for coming by, really nice to see your comments and to feel the connection to you three.
Really enjoy the blog world and meeting all you lovely people.
Have a good afternoon/evening.

Stan said...

Dear Herrad:

I feared you would find that photo of me out taking my morning ice bath in the back-forty ponds. Thanks a lot for sharing it lol......

I am sorry to hear your having such a rough time getting long stretches of restful sleep.

Just wanted pass along my wishful thoughts, prayers, and kind hopes.

Have a great day!

Herrad said...

Hi Stan,
Thanks for coming by, your photo was too good not to share.
I am afraid that was the price you pay for your radiant beauty and grace.
Thanks for your good wishes.
Have a good Monday.

Noe Noe Girl...A Queen of all Trades. said...

Howdy Herrad, Sorry I have not been by. Last week was nuts here but I'll take it. Sorry about those sweats! I am "mentalapausing" and they sure take a toll on me at times. Thinking of you often my dear!