Saturday, November 21, 2009
A Spring Day in November.
Despite a huge problem with waves of sweating last night I did manage to get off to sleep without lying awake for hours.
Before I did drift off I had to keep placing my arms over the duvet to reduce the heat somewhat.
Of course as soon as my arms were on top of the duvet, I would feel how cold it was and my temperature would plunge rapidly and I would have to get my arms back under the covers as quickly as possible.
The good thing was that despite the sweating, which was horrid, sweat was dribbling down my neck and causing my neck and ears to feel sore.
Glad I went to sleep when I did as otherwise I am sure I would have started to scratch the irritated skin.
Slept well but again got woken up by a spasm when I must have made a tiny movement with one of my hands.
Hate the way being awake makes me so aware of every bit of my body that hurts, this morning I was instantly boiling hot too and dripping with sweat.
Richie heard me and got me some THC which let me drift off into sleep again, lovely; a few extra hours were just what I needed.
After a couple hours I woke up again and again the pains were all awake too and again I was bathed in sweat.
I distracted myself with doing my arm exercises, they went very well and the THC seemed to help me relax plus I managed to use the handle above the bed to get my shoulders off the mattress.
Important for me that I do the arm exercises every day, am convinced that the exercises have given me longer use of my hands and arms.
I am hoping to get some feedback from my doctor and the neurologists this week about LDN. One neurologist promised to telephone appointment, so far he has not phoned.
The other one Dr. Prof. Polman from the V.U, Amsterdam has not even sent a read receipt, probably too busy being an MS expert.
I do recall that despite being a well known expert on MS he had no suggestions for a treatment plan for me in 2008.
Our doctor, our GP, will be here on Monday to change the catheter so I will use the opportunity to talk to her about LDN.
I think that Dagma will have more chance of getting some feedback from the neurologists than I have had so far.
It is a pleasant sunny day; Richie says it feels spring like today, the calm he reckons before the next outburst of rain and high winds.
Have a good day.