Bright Cold February 3rd 2010

Pop Art.

Thought Ton would come here today, so took a lormetzepam last night and slept until 10.30 did my arm exercises and Richie did my leg massage and exercises.

After that I took my baclofen and calcium/vitamin D tablets and then brushed my teeth and washed face and neck and hands.

Then I was ready for the weekly inspection by Ton, from the RCA, the Amsterdam Rehabilitation Clinic.

The phone rang and it was Ton to say he wouldn’t be here today, but tomorrow at 11.45 with Ludwine, the doctor’s new assistant.

She, Ludwine is made for this job, she is so good, good empathy with her target group which are people rehabilitating from a variety of reasons and causes.

When I first met Ludwine I was still walking, if only just, had recently bought a smart black walking stick.

Then I could just about get up and down the two flights of stairs between me and the outside world.

Shame the tablets they have now to stop walking getting progressively worse, were not available then, they may have been able to help me then.

Maybe if my first neurologist had taken some action, things might be different now too, he did nothing and would not even give me any information, none.

He very clearly told me in so many words, I can’t help you are going to get progressively worse.

We can warehouse you, and give you personal care, we just can’t offer you any medical care, and there is nothing we can do to influence your MS.

Sadly there is nothing we can do, but observe and watch and document your steady decline.

All the more reason for me to make sense of it by deciding I can only be here and now, we all are.

We all need to realise that we all only have this now and none of us know what the next minute can bring.

Sounds good to me, like the only good way to live.


It is very cold today and bright and sunny which I am going to enjoy now.

A Wet Sunday in December

Pop Art.

Yet another grey and extremely rainy day, so rainy the dogs do not seem keen to be outside today.

Slept without problems last night which was very pleasant indeed, had been concerned that it would not happen and I would have to wake up my darling Richie for THC.

I did ask him for some THC when I woke up too early this morning, luckily I slept again as soon as I had inhaled the vapour.

Don’t the weekends go quick one minute it is Friday and then before you know it Sunday is here again,

Had not expected it to go nearly as quick as when I was still working, when Monday always seemed to come round at top speed.

Weekends seemed to last for minutes compared to the days at work, guess going in earlier than I had to must have made it a longer week.

Always thought it was good to be in early, so I could get everything organised for 8 .30 when colleagues would be needing the Service Desk.

Enjoyed my job, liked supporting my colleagues and organising cars, laptops, mobiles, conference rooms, lunches and other things they needed organising for them.





Yesterday I got an unexpected award from Jo@ Diary Of A Sad Housewife.

http://diaryofasadhousewife-jo.blogspot.com/

I would like to pass this on to everyone who reads this blog and hope to see it on lots of blogs.

Let us make the circle of friends a big one; I would like to spread the love to all who visit my blog.

Could you please visit the following blogs and leave a supportive message:

http://musingsofacrankycaregiver.blogspot.com/http://screamingrichie.blogspot.com/

http://spinfortunaswheel.blogspot.com/

http//motherofshrek.blogspot.com/

http://talesoflifewithmultiplesclerosis.blogspot.com/

http://www.arrangingshoes.com/

http://kaleidoscopemuff.blogspot.com/

http://bipolarsoupkitchen-stephany.blogspot.com/

http://a-journey-of-another-kind.blogspot.com/

It is very dark now; the rain seemed to have stopped briefly, so Richie and the dogs have gone to the park.

That is good for them, now we will have happy, relaxed dogs which is how we like them, perfect, and there is stew and dumplings and a mince pie (raisins/currant) for desert.

Despite having to struggle to type, my fingers feel like they are glued together life is good.

Have a good new week.

Good news and Sunshine, Blue Skies and Strawberries, Butterflies and Bees.

Pop Art.


Slept well last night until something woke me up, from the light outside it was before 6 am.

Just as I was thinking what now Richie got up, so when he returned I asked him for THC which was successful in helping me get back off to sleep.

Had a strange dream about being stuck somewhere in the middle of someone’s endless rambling conversation.

When I told Richie he suggested that is was maybe someone talking outside, we do get alot of people who have to stand under our bedroom window talking loudly.

Weird that they never seem to mind who hears them, it is like people who go on the Radio and TV.

And tell millions of listeners their secrets which up to that moment no one not even family and friends knew.

Oh well just have to learn to live with these street 'performances' maybe I will even see the funny side.

Ton Peeks,from the RCA, (Amsterdam Rehabilitation Clinic) came around 30 minutes earlier today, yesterday it slept from his mind, because he was so busy at the Rehabilitation Clinic.

He was so embarrassed about this, and suggested he came round today at 12.15, so I was very surprised when the phone rang and Ton said he was at the front door.

Luckily Richie arrived home with the dogs so Ton could come up and inspect the wound.

Ton was very pleased it is barely 1 mm, very tiny and the skin looks very good around the healing wound.

He will be back on 7 October, when we all hope that it will be totally healed up and I can start to sit again.

If all goes well the adapted wheelchair should be ready not too long after Ton’s inspection.

Richie and I are very happy about this, and as if to highlight our happiness the weather is exceptionally good.

Blue skies, sunshine, strawberries,bees and butterflies on the flowers by my bedroom window and it is warm.

Richie took the dogs around the block in a short sleeved t-shirt and Ton, too had a short sleeved shirt on.

He took a photo for his files and to show Doctor Stolwijk the progress, Ton is delighted and very happy to come by weekly when I start to sit again.

I feel optimistic now, that soon I will be able to go out again something I was not convinced of before last week.

Mathilde, lmy physiotherapist was happy to hear the good news when she came round for our exercise session.

Happy days are ahead, know this for sure now, last week Thursday modelling session showed me that sitting in my wheelchair was a realistic prospect.

Something that will really happen and not just a day dream but a real prospect.

I am so happy, will enjoy today very much.

Hope you do too.