Still Trying To Enjoy Life.

Both of us need a boost as life gets harder due to my curvature of the made worse by lack of muscles caused by being in bed since feb 2012. Now I need moving every two hours through the night, most nights we get 3 hours sleep then i sleep on only to be ripped out of sleep by a spasm. In constant pain, discomfort but still enjoying all I can.

Back Again.

It had been my intention last week Tuesday to write every day, typically things turned out different to how I planned. On Friday night we watched later with Jools Holland, it was a good show some of the artists appearing were: Paul Weller, Father John Misty, Curtis Harding and Lianne La Havas I only knew Weller out of these four. I thoroughly enjoyed Father John Misty, Curtis Harding and the lovely talented Lianne. Sadly since then Google blockaded my blog and posting became impossible which upset me. So glad that I could log in to my blog just now and not see Google's message informing me my blog was blocked. Today has been a pleasant day, we have seen Southend beat Wycombe Wanderers at penalties at Wembely,Southend go up to League One. Richie is happy tonight Southend have never been to Wembely before happy days for Richie. Hopefully Gooogle's faulty algorithms have been corrected and access won't be denied and I will be able to post tomorrow.

Alot of crap.

When I was logging in to my blog just now and it did'nt work yand instead of seeing my posts I was locked out. Once again, like the day before there was Google's message telling me my blog was blockaded as they thought there was suspicious activity on it. If it wasn't so very annoying it would be funny, there was nothing going on with my blog, it was only me posting again. Luckily the problem was relatively quickly sorted, what a relief, hopefully this will not be happening daily, it should not have happened now. By the time I could write it became almost impossible for me to sit well for more than a few minutes without needing to call for Richie to adjust my posistion. This happens regularly now, some days I sit better than others, one of the reasons for this are bowel movements. If I need one then it can become really difficult to sit in a stable position to use the Lipstick well. On those days as soon as I start to have many errors, at that point these days its best to stop, save and return

Great To Post Again.

Good to be writing something everyday, in that way hopely it will be possible to gently re-establish doing it daily, I have plenty to write about so my plan will surely work,

Can't believe now that I stopped writing daily in December 2012, pointless to reproach myself now, especially as it is something that I do all the time, iI hate doing it,hard to stop.

When Richie got me the Lipstick in September 2014, my intentio had been to start posting daily, forgetting  that the new mouse would need  practise, then things did not go as planned.

Everyday my intention was to write, sadly it didn't work which was quite demoralising, the other day I decided that I wanted to stop endlessly prevaricating and write.

 Life is too short to waste reproaching mysef endlessly, making myself unhappy abit of an odd way to be, especially when posting is what I enjoy

Wednesday,13May, 2015 Access Denied to my own blog tonight.

  It has taken me  hours to get into my blog tonight because Google had blocked my account, they thought someone had hacked my blog.

Not so, it was me posting again.

It's too late now for more and I am tired but happy I have my blog back

Trying to Seize The Moment.

It's more difficult than I thought to seize the moment and post again, but it is more difficult than I thought it would be.

Realise now that I have to  reinstate posting as a thing that I  do everyday, today makes me think this ttime I will make it happen.

Have missed posting and contacts with friends.

See you tomorrow.


''

Good Intentions.

The post I posted on 31st of December was meant to  ttbe my first of many daily posts,sadly this did'nt happen and after that I had many more plans,good intentions towrite my blog dailysomething I miss.
I am hoping that writing this will break my block and I can start writing again.

Christmas 2014 has been great.

Christmas has been very enjoyable with my darling Richie,

Even  though I am a quadroplegic now, this ms has really fucked my body but not my mind, I am still cheerful and enjoy everything I can.

So glad I get medicinal cannabis here and don't have to use opiates,which do more harm than good.  Canabis effectively curbs the pain,allows me to relax and enjoy life without any damaging my body..
In 2015 i shall post regularily,which
Which i look forward to.

Hfappy New Year.everyone.

Fairytales.

Still can't believe that KesterenRTD directly lied when they told me  in April 2012, that the Seetech pc would let me do everything I always did.

For example, write my blog, visit other blogs, read newspapers, listen to radio, send & receive emails.

What a shock to hear on 8th August, that the software could not cope with passwords which means that I wouldn't be able to stay connected.

The Seetech pc they were leasing via the health insurance was giving them lots of money for a pc which is essentially just a typewriter.

Makes me wonder how many others like who have been lied to and the health insurance who have been defrauded.

First longer post.

 
Brilliant being online again, especially after  nearly two years, which is thanks to Shannon Electronics excellent plug and play invention, the LipStick.

This invention of theirs has had a dramatic effect on my life, instead of passively watching the telly all the time now there is another option.

Now I  can get online again, write my blog posts, send emails, read newspapers, listen to music which I am thoroughly enjoying.

Being able to write again is special, as there many days when I doubted whether I would ever be able to use a pc again, it seemed for ages that this would be impossible. 

My hands started losing some functionality when we moved to this apartment in 2007,  we had to, as I needed a lift to let me go outside independently.

Without the help of  the mobility bus staff who carried me up, down the stairs in our previous apartment, a scary experience, one I endured for a year.

There was no choice, either put up with being carried or stay home all day and everyday, our apartment began to feel like I was  imprisoned in it, apart from medical appointments.    

Sadly when we had moved here despite the lift, I could not go out on  my own as I could not use the keys to open doors, the move was a year too late for going out independently.  
                 
It was horrible losing the use of my hands, first my right hand , my right index finger became floppy and unusable to type or do anything, a sad moment.

One consolation was for awhile it was still possible to use the mouse with my right hand and type with my left index finger , voice recognition was good, it helped me post and send emails.

This worked well until my left index finger also got too floppy to type with, luckily my little finger on my left hand allowed me to open and close things, Dragon voice recognition did the rest.

The Seetech pc did'nt work for me, I thought all I needed was more instructions how to use it, finally  the supplier KesterenRtd Het Dorp agreed to visit again on 8th August this year.

Their engineer stunned, Richie and I by telling us that it was not possible to go online with  the Seetech as the software could not process passwords.

 What a bombshell after more than  two years of being told I could go online and write blog posts, send emails, visit other blogs and buy presents.

 Turned out it was all lies, when we said take the Seetech pc away it is useless, they told us about the LipStick, so Richie bought it immediately, otherwise I would be still waiting.

Access denied has not been hijacked.

When I got the message that a friend  had problem accessing my blog, everytime she tried she was taken to this link:

http://neocounter.neoworx-blog-tools.net/

Richie tried to visit my blog he could get in until hursday when it became impossible, after some more research Richie discoved that  http://neocounter.neoworx-blogtools.net/ were bankrupt and they had been hacked.

I signed into my blog and went to layout and deleted the neocounter then Richie asked friends on facebook to check if they could visit my blog without prolems.

 It was good to know they could access my blog again, brilliant news.

Only thing I deled neocounter before seeing what the neocounter did, the  important thing for me is that my blog has not been hijacked.

Innovative Speech Technology.

 Some weeks ago I received this email, it is very interesting so today have decided to share it a blog post.

Hi Herrad,


I came across your blog, Acess Denied- living with Multiple Sclerosis , and I think your work is fantastic! I believe I have a story that you may be interested in sharing with your readers. First, I wanted to write a bit about myself:


My name is Nicole Caron, and I'm the Social Media Manager at VoiceItt. VoiceItt is developing innovative speech technology that will enable people that suffer from motor, speech, and language disorders to easily communicate using their own voice, by translating the unintelligible pronunciation into understandable speech. The software based solution can run on any mobile or wearable device, allowing the person to communicate freely with anyone anywhere.

The video on our Indiegogo campaign explains it all.igg.me/at/talkitt

https://www.indiegogo.com/projects/talkitt-this-is-my-voice

We have been promoting our product through various radio stations and podcasts, and I thought this would be a great story for you as it's both technologically revolutionary and very emotional. Your support in sharing our story will lead us one step closer to changing the


Let me know if you have any questions, I will be happy to answer them. I’ve attached some photos and a press release.

Looking forward to hearing from you soon. :)


Kind Regards,
Nicole

Possible Problem.

A  friend mailed me the other day to let me know that when she tries to visit my blog Access denied,

 she keeps getting taken to another website.


http://neocounter.neoworx-blog-tools.net/


I wondered if anyone else has had this happen to them?

If so then there is a  big prolem which will not be easy to get it resolved because Blogger is unreachable.


Hopefully noone else has problems accessing my blog.

Happy Days.

The LipStick mouse has really added so much to my life since my darling Richie bought it for me  in September.

Finally I can access the internet, send emails, write my blog, at last after nearly two years access is no longer denied.

 Since getting the LipStick, I have been practising lots, learning how to use it, that reminded me of learning how to use  a mouse for the first time.

Learning how to use this one is just as hilarious, I have opened things I did not mean to open and closed others that were just opened.

Deleted emails and am generally having a laugh at my mishaps, have noticed that I am getting confident using the LipStick, this means I can gradually increase the speed.

This has given me a huge boost, it has done the same for Richie, it has cheered us both up, happy days! 
                        

Brilliant to be able to post again.

its enjoyable finally being  back online thanks to the Lipstick mouse, what a wonderful invention from shannon electronics.

brilliant to be able to communicate again, nearly lost hope began to think i would never be able to use a computer ever again,

now my life has been given a huge boost thanks to richie getting me the lipstick and a new laptop.

have to learn how to use both,windows8 looks very different to vista.

hope to be able to post regularly soon.

Brilliant being online again.

Feels wonderful to be able to do this thanks to the LipStick invented by Shannon Electronics.
 http://www.shannonelectronics.nl/

this invention is life changing, i  sent a mail with positive feedback to the inventtor thanking him.

Brilliant to be able to do this again, but it is tiring learning something new,i am tired now but happy.

Thanks to all my dear blog friends for your ccomments, they made me very happy.

Hope to answer them next time,lots of love to  you all.

Really apppreciate your visiting my blog especially after nearly two years of silence.

When i lost all function in my hands it was no longer possible to use my laptop which was extremely upsetting, i had hoped that my little finger on my left hand would keep going for awhile longer.                          
More from me next time, i need thc and  a drink.                                          

Really moved.

It was so good seeing my blogs again yesterday, first time since March 2013, its so good to be back.

I was really moved to find comments from dear blog friends  which I had not expected to find.

Thanks for your lovely comments, I hope to be posting reguarly soon as I get the hang of this LipStick mouse invented by people from the Technical University in Delft.

It is not very difficullt but it is quite tiring moving the mouse with my lips I am quitee tired after doig this short post  so will stop now for today.                                                                          

Just to say hello.

Just to say hello and Herrad is learning how to use her lip mouse and hopes to be blogging again soon
Richie

Feeling positive despite limitations.

 

Roberto Matta

http://en.wikipedia.org/wiki/Roberto_Matta 

Two appointments I was dreading one yesterday and one today went very well which was a tremendous relief for Richie and I.

The appointment yesterday was with my case manager as well as my advisor, they both work for the councils mobility Department.

They are both very good women, who have to work within tight parameters nevertheless they do as much as they can for me who is admirable.

2 other people were also present and they were Percy from Welzorg and Ruud from a company called Summit, they make the custom-built wheelchair backrest.

We were both not looking forward to this meeting however as soon as Jacqueline my case manager arrived the appointment started positively.

She suggested we make a list of all the things we did not like about the wheelchair, and there were many points all of which were noted.

By the time everybody was here the list was completed, at first the four of them turned their attention on the wheelchair examining it thoroughly.

Finally Percy said that there was nothing that his company Welzorg can do to improve the wheelchair finally there were no more prevarications.

Right away Jacqueline decided that the only cause of action now was that I needed a new wheelchair.

This means a new supplier so I do not have to deal with Welzorg anymore about my wheelchair which was fantastic news this cheered me up tremendously.

On the 30^th of January I have an appointment at 1400 with Annelies my advisor and somebody from the new wheelchair supplier Beenhakker to discuss the new chair.

In the meantime Ruud from Summit will temporarily adjust the backrest on the wheelchair, as soon as it known which wheelchair I will get he will make a custom built backrest for the new wheelchair.

Richie and I are very pleased with how things went yesterday this really is progress and this time we will make sure the new wheelchair is a good one.

At 1200 today I have an appointment with the doctor from the rehabilitation clinic as well as Milou the wound nurse.

This was the appointment I was dreading the most as I knew that Janneke the Dr was going to cut some hard skin off around the edges of the wound.

In order to stop myself lying awake all night thinking about it I took a sleeping tablet which worked very well.

The procedure seemed to take forever luckily I don't feel a thing nevertheless I was relieved when it was all over as it's not my favourite activity.

Janneke was very positive about the wound saying it was looking good and nearly healed up which was good news.

Hopefully trimming off the hard edges will help the wound to finally heal; it would be great if that were to happen at the same time as I get my new wheelchair.

Despite my increasing limitations I'm feeling very positive about the future and I'm looking forward to being able to get about again.