If Only Dreams Came True.

 

Roberto Matta.

http://en.wikipedia.org/wiki/Roberto_Matta 

Today I've been quite introspective which is not surprisingly given my situation of having multiple sclerosis and curvature of the spine.

Right now I don't want to be involved solely with my thoughts, that is why writing my blog has been and still is a very important part of my daily life.

Writing my blog has been crucial for me, I think it has helped to strengthen my resolve to enjoy everything that I can while I can.

It has put me in touch with lovely people from all over the world and that has been wonderful, it is so good to be able to get to know other bloggers.

The support I've received has been quite phenomenal and I appreciate all of it very much, I also enjoy being able to support other bloggers too.

I think that being able to support each other is absolutely essential for us as human beings; we need a society where mutual aid is central.

That would be much better than the society we have right now where everyone is competing against each other.

We all do so much better when we cooperate with each other for our mutual benefit, if only this were possible what a beautiful world it would be for us all.

Right now this is my dream hopefully it is one that is shared by others and it will be reality someday soon, for now I'm going to keep the dream alive.

Friendship And Support.

James Ensor.
http://en.wikipedia.org/wiki/James_Ensor

Yesterday was a good day, really enjoyed seeing Antje in the afternoon, so glad that Richie had found my disabled parking permit on Tuesday night.

Meant that Antje could park right outside for nothing which is good, otherwise it is approximately 3 euro’s per hour.

She was here for 3 hours which would have cost Antje 9 euro’s for her visit to us, real relief when Richie found it between some old letters.

While Antje was here another friend, Eva came by, which was a pleasant surprise as people generally do not pop by spontaneously.

Everyone here makes appointments, these days they are easier to cope with as we do need to know when I need to be ready by.

In England, I was more used to friends popping by and surprising me, nowadays life is sadly more organised, guess it has to be with MS.

Need to let friends here know that we really would appreciate seeing them lots more, more visitors is  best, as it is not good for either of us to get too isolated.

Easy enough to do especially as we do enjoy each others company so very much, that it is easy enough to forget to organise visitors.

This was no problem when we were both working and seeing plenty of people during the day, plus we could go out in the evenings.

Life has changed so much these days having MS, that I really need to remember that in order for life to be ‘spontaneous’ I have to get organised.

First step is to let our friends know they are very welcome here and we love and appreciate their friendship and support.

 

We Inspire Each Other.

Paul Gauguin.

http://en.wikipedia.org/wiki/Paul_Gauguin
 

Really enjoyed writing my post yesterday, good choosing the blogs that I wanted to give the You Inspire Me Award from Kris @ Behold the Metatron.

It was a lot of work made lighter because I enjoyed doing it so very much, good to let others know that they inspire me.

Important for me to let other bloggers know that they help to make my life better and easier because of their inspiration and support.

.              

When I went to publish yesterdays post I made a happy discovery that all the links were made active without my having to do anything apart from click on the compose option.

That was a brilliant discovery especially as there were 50 links to be made active, so quite a  relief to find it would not take ages just a couple of clicks.

Nice to feel happy with Blogger instead of annoyed because of yet another glitch, as there are so often.

Today I am still enjoying choosing the blogs to pass on Kris’s fine award to yesterday, if I could have I would have given it to all the blogs I visit and read.

Hope that no one thinks that they are not inspirational because they were not on the post yesterday.

Yesterday I choose a cross section of all the blogs that I visit and enjoy reading again and again, good to know and experience that we all support and inspire each other.  

Our Love For Each Other Is Stronger And Brighter Than Ever.

The salmon fisher. By Eilif Peterssen (1852–1928)


Got good supportive feedback about yesterdays post, the feedback and support that I get as a result of my blog is really wonderful.

I have met so many good people through the blog world and been given such a lot of friendship and support by them.

Getting and giving support is so very important for us all, I am glad that I too can give support to others.

Important for me to feel part of it all and to be able to offer friendship and support to other people too.

Friendship and support creates bonds between people and that is of crucial importance for us all right now.

Especially when faced with something as difficult as an incurable disease or anything that ‘cripples’ you and stops you from living your life as you used to.

Having Primary Progressive MS has totally changed my life and Richie’s life, how we are living now is so different now.

The salmon fisher. By Eilif Peterssen (1852–1928)


Being able to talk freely about anything with Richie really helps me to cope with my MS and it also helps me to stop being anxious, panicking, worrying, getting fearful and even helps me cope with getting depressed.

It is very difficult dealing with the fast progression of my MS, it is very difficult to cope with, and luckily for me I have Richie helping me.

His love and support make everything easier and better, it is so good to have him close by, Richie is absolutely invaluable to me.

It is great to see and feel that this dreadful disease has only made our love for each other stronger and brighter than ever.

Even Closer Than Ever Together.

David Hockney.


http://en.wikipedia.org/wiki/David_Hockney

Had a good talk with Richie last night about coping with my MS and trying to stop being anxious, panicking, worrying, getting fearful and depressed.

Richie told me that he found dealing with the fast progression of my MS had been very difficult to cope with.

We both realised independently that we can not do anything about what will happen in the future.

But we can do something about the present, we can both affect the moment we are in, better to try to have an affect in the here and now than a future yet to happen.

Much better than worrying about the future, it is not easy to stop worrying, being anxious and getting panicked.

MS is such an unpredictable disease that it is easy to get extremely worried by sudden fast progressions.

Especially like mine where I was still mobile at the end of 2006 and totally immobile by early 2007.

A scary rollercoaster ride for both Richie and me, neither of us knowing what would happen next.

Really difficult to not panic, the other thing that is difficult to control is depression, which is common with MS.

Only realised this spring quite how extremely depressed I had been, having to be in bed for so long waiting for my pressure sore wound to heal.

My defence mechanism for months in my first six months in bed was to say that I was ok at all times, which I clearly was not.

As soon as I posted in February 2009 about how I really felt and what life was like for me, then I got so much support from the blog world which was wonderful.

Helped me realise again how important other people are, how we all need support from each other, none of us can cope totally on our own, we are social creatures who need eacah other.

Starting to be open and honest about my situation and writing about it every day has been very good for me.

It has been invaluable in helping me to understand the whole process that I am living through.

I hope to be here for a few more years and will take it one day at a time and make the best of each moment that I have with my darling Richie.

So glad he is here with me sharing this time with me, which is a special time for us and brought us even closer than ever together.

Brilliant News.

Brilliant news last night, suddenly not long after Mort @ Caring and Sharing had talked to his local Member of Parliament.


http://mortonlake-caring-and-sharing.blogspot.com/2010/01/coincidence-or-not.html

He suddenly got a phone call from Social Services and he now has an appointment next week to be assessed for a new care plan.

And not before time too seeing as he first applied to be assessed last year in September.

Glad that finally something is happening, hope that the result is better help for Mort's mum and for Mort himself.

Brilliant work by Mort getting straight on to his MP and as so often is the case the current MP has a direct line of communication into Social Services.

Which they used and the result is an appointment next week for an assessment of their needs.

Hope you give it to them straight show them how hard it is for you to cope Mort.

Don't do what I did at my first assessment where I was trying to cope and did so well she did not give me the correct classification for being re-housed.

Nor did she give me the type of wheelchair that I needed, she recommended a collapsible wheelchair and the RCA said no it must be a solid frame, as I am in it all day.

Luckily I was referred to the Rehabilitation Clinic (RCA) in November 2006 and they spotted the mistakes right away.

They advised me about the wheelchair and they got my housing reclassified, mind you we still had to wait another 6 months for our new place.

Waited a year for our new apartment, where I could come and go without being carried up and down the two flights of steps as I had been for 9 months.

Shame that the Housing and Social Services can not act quicker, if we had got a new place in the summer of 2006, I could have had some independence , as it was by the time we had moved I could no longer go out no my own.

Good to remember to never underplay anything with people assessing you, show them warts and all and remember it is just business for them so guess we have to treat it the same way.

Hopefully that way we will get the care, support and the aids and appliances we need.

Trying to contact Kimberly

Does anyone know how to contact Kimberly @ My Journey with MS

http://myjourneywithms-kimberly.blogspot.com/


I have not been able to post a comment for sometime, think all month now.

She has no email address that I can see, so am hoping someone has her mail address so she can be contacted.

She also has a problem with her template and has asked for help, by now she maybe feeling abandoned which is not true.

Hope she sees this or someone has her mail address.

Thanks for your support.

Good friends and neighbours.

Our good friends and neigfhbours are priceless they give us so much support and love and understanding.

Which is excellent and stops us getting too isolated and sad.

Have to remember to ask people to come by as do sometimes forget and wonder why there are no visitors.

We are all brilliant people but not such good mind readers, so need to communicate that it is nice to have visitors.

Oh well as with everything onwards and upwards.

Here's to good friends.

Thanks for all the support.

Have been very touched by all the support I have had from other MS bloggers from the US.

Lisa featuring six of my posts in this months Carnival of Bloggers was really lovely to see and very moving.
(http://carnivalofmsbloggers.blogspot.com/)

And reading Shauna's post about it and then reading Jen's
(http://jen-at-home.blogspot.com/)

and Denver Refashionista's comments made me feel very supported and understood.

(http://ysestringer.blogspot.com/ and http://denverrefashionista.blogspot.com/)

It is good to be back on track and I am determined to not worry and to just express myself without worrying so much if I am being a burden on others.

Forgot for abit that the blog is there precisely for the purpose of me being able to express myself and to chart what is happening and how the MS has changed my and our lives.