About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Monday, March 15, 2010
Hoping For Sunshine On Wednesday.
All I do these days is lie, here that is the thought that goes round and round in my head of course that is not the entire truth.
When I am down everything gets the same tint, it is after I have let my emotions go freely that I can begin to list for myself what I can actually do.
.
It’s abit like the film The Life of Brian, so what have the Romans done for us.
Surprise surprise there was a long list of what they had done.
Just like me, I too still do more than I am inclined to give myself credit for when I am not feeling so positive.
Of course I do need appliances, without the adjustable bed lying down is all I would be able to do.
What is causing me considerable anxiety is the fact that the extra time waiting in bed, for this tiny little tear in the skin to heal is not good.
The muscles in my torso are getting very slack, which means that I can not sit upright anymore without adequate support.
I now need constant adjustments as my posture changes all the time, seem to be sagging in the middle.
Must be getting harder for Richie to cope with, as he has more work now and as my condition deteriorates he will have even more to do, so glad he does it.
Had a very useful appointment with Johannake, my new occupational therapist, from the RCA, Amsterdam Rehabilitation Clinic
She advised us to put a pillow between my feet and the foot end of the bed to support my ankles so my feet point upwards and do not flop or point to the side.
This small adjustments has already made a big difference to me, since Johanneke suggested this I have been sitting better
Think these easy tips are the best, an easy solution to a situation that seemed more complex, funny how this simple solution has cheered me up tremendously.
Sadly again no sun today instead it has been overcast grey and dark and raining all day this has been more than compensated by the dogs keeping me amused with their games around me
Hoping that the weather will improve, hoping for sunshine on Wednesday for my birthday.
.
unbshine On Wednesday.
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14 comments:
Hi Herrad,
Happy Birthday, early!
HUGS
That's a great little trick about the pillow! You know, I may sound like a broken record, but for me, the simple solutions are just the best ones. I sure hope you have sunshine on your b-day, and then some good news from Ton the day after!!!
Hey Herrad, glad to hear the pillow is helping, good to know there are options. take care,
Andy
Hi Herrad! I'm sorry to hear that your condition is worsening, but at least you've got a few little tricks to make your quality of life a little better! And I hope you get your sunshine for your birthday! That's not too much to ask for and you deserve it! <3
+Rei+
I so hope you get your sunshine tomorrow !!!
Hi Rain,
Lovely you came by and left a comment.
I totally agree I love a simple solution.
Hope like you do that the weather gets better for Wednesday.
Hi Stephany,
Thanks for your visit and the early birthday greetings.
Hi Andy,
Thanks so much for coming by, always special seeing a comment from you.
The pillow is working wonderfully well, I love a simple solution especially when they work well.
Hi Rei,
Thanks for coming by, really good seeing your comment come in just now.
Always good to have a few tricks when you need them.
Thanks you lovely friends for coming by and leaving your comments.
Hope today has been a good day and tomorrow will be too.
Love,
Herrad
I'll continue to polish the sun, to be ready in time, making bright the day for you all.
Until then wish you a wonderful start into Tuesday as well.
Oh Herrad - you are so right. It is very easy to get down... I want you to know how much strength and courage you give me - when I go through my own hard times. Life is always better when we look at the positive - thanks for reminding me of that :)
YES - happy early Birthday!!
Happy birthday Herrad, have a bright sunny day
Hi Robert,
Thanks for your visit and for polishing the sun, seems to have worked as the sun is shyly coming out here too.
Hi Marit,
Thanks for your visit, which always gives me a huge boost.
Glad to be able to give you support.
Thanks both of you lovely friends for coming by.
Have a good day.
It is here, now the sun is out.
Love,
Herrad
Hi Amrita,
Thanks for your visit and for your birthday greetings for tomorrow.
Love,
Herrad
Hi, beautiful lady. So happy you have such immense support in your life -- and, as always, the thought provoking and stunning pictures you post are a lovely way to begin each day. They show such light, color and hope -- very much like you yourself do.
I'm sorry I've been such a neglectful blog friend lately -- am trying to get caught back up and stay there!
Stay strong, lovely one. I'm very proud of your proactive stance against MS -- you are an exemplary example of all that is good.
Peace and serenity to you, my beautiful friend,
~Jo
That does sound like such a simple little thing, but it makes perfect sense!
The sun is just waiting until tomorrow to come out!!!
(((HUGS)))
Hi Jo,
Thanks for coming by and leaving such a nice comment for me.
I appreciate it very much.
Hi Erin,
Thank you so very much for coming by.
Love simple solutions like the pillow between my feet and the bottom of the bed.
The weather has got better today, it was bright and sunny with blue skies today.
Have a good day tomorrow.
Love,
Herrad
Love,
Herrad
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