Friday, June 18, 2010
Today It Is Cool, Grey and Raining
Gareth's Photos From Wales.
Today is rotten weather compared to yesterday, there is no sun, it is cooler, grey, cloudy and raining.
Glad I went out yesterday afternoon/evening with Richie, Nur and the dogs, we did not go far just to the end of the road to the Kostverlorenkade
Sadly by the time we went the wind was getting up and it was quite cold, luckily Richie had wrapped me up in the fleece snuggle and tied a scarf around my neck.
So that helped a little but the wind was just too cold, a really sharp wind glad we were not any further from the apartment.
The other thing that I noticed again was how difficult it is for me to roll around outside without arm rests at the correct height.
Arm support would mean that I do not have to take all the strain of holding my arms up as we go down the road.
Lack of arm support means that at the moment I can not go further than our street as any longer and my arms and shoulders get exceptionally painful.
Hope that this time for once the burocratic process will prove to be quicker personally I do not believe it will be.
If it were really quicker then life would be easier and everything would go smoother without all the burocracy that is involved every time a disabled person applies for assistance,
Up to now most of what I have applied for has got to me too late, like the scoot mobile which I got when I could no longer manage to walk down my steps in 2006.
Or the hand holds that I waited to have installed for months making the best of grabbing on to doors and walls and anything that could give me support.
Not having the hand holds right away made getting around became quite a dangerous procedure and showering even more so
Just thinking nostaligically back to when I could still drag myself around, how I had hoped that my MS would allow me to retain some vestige of mobility for some time.
Being in a wheelchair was not so bad when I could still be reasonably independent, guess that these days more than a quick peek at how things were is not good for me.
Really aware that this disease means that everything can go faster than you think so rather than spend time looking back I want to spend that time being here and concentrating on the present.