Friday, June 04, 2010
'' Go Where No Man Has Gone Before.''
Suddenly and without warning I felt thoroughly miserable yesterday afternoon and tears started running down my face.
Could not stop them so let it happen, l figured the tears were happening because of all the stress that I have.
This week has been full of expectations, not all of which happened; the one that really has got me upset is the lack of arm support on my wheelchair.
It has been obvious since last year that I need to have the arm support adapted to suit the adaptation of the back and seat.
In my naivety I thought that the agreement from the Amsterdam Council covered the adaptation of the whole wheelchair.
Have to keep dragging myself back from looking over into a pit of despair and hopelessness, I am always positive but sometimes things get too much for me.
I find that a howl of outrage and anger and despair usually helps me and I can go back to being positive again.
Doing just that helped me resume being me yesterday, but just for a moment I could not see any point in being here.
Glad crying relieved the pressure and afterwards I felt much better.
Just read an article in The Independent newspaper about 4 drugs which went on trial seems the report was not published for 7 years afterwards.
The drugs were supposed to delay the progress of MS but seem to have the opposite effect.
The Independent’s Jeremy Laurance, the Health Editor says
‘’The most expensive publicly funded drug trial in history is condemned today as a "fiasco" which has wasted hundreds of millions of NHS cash and raised fresh concerns about the influence of the pharmaceutical industry.
The scheme involved four drugs for multiple sclerosis launched in the 1990s which were hailed as the first treatment to delay progression of the disabling neurological condition that affects 80,000 people in the UK.’’
Jeremy Laurance goes on to say:
'The first report on the outcome was due after two years but was not published until last December, seven years later. It showed that the drugs failed to delay the onset of disability in patients – defined as walking with a stick or using a wheelchair – and may even have hastened it.’’
Not pleasant to read that drugs which are sold to delay this shitty disease makes the progress of it even quicker.
In his conclusion he says:
‘’ Multiple sclerosis is a chronic disease. It may take 40 years to run its course. In developing drugs to slow its progression, doctors have used brain scans to show lesions which the drugs appeared to prevent, and gave quicker results.
Some experts thought the lesions were the disease but little effort was made to check. But preventing lesion formation does not prevent disability caused by the condition. The drugs deal with the lesions, not the disease.’’
Seems they have been approaching this research from the wrong end and have wasted valuable time and money trying to stop the development of lesions.
If only more research were done to find the causes and try to find a cure and not only a way to slow the progress.
The later is a pharmaceutical company’s ideal drug, one which people will need for the foreseeable future.
That‘s perfect for these ‘drug dealers’ as ever more people become hooked and can not stop for fear of their condition getting worse.
The influence of the pharmaceutical industry needs to be minimised, they need to serve us and not the other way around.
I know it will not happen in my lifetime but would it not be good if money were abolished and instead of tiny majority getting all the wealth the majority could be sustained by the earth’s natural bounty.
It is not pure fantasy, this world has more than enough resources to feed us all and provide everything we need.
If only we could dare to explore these possibilities and like they say in Star Trek
'' Go where no man has gone before''