The Repast Of The Lion, 1907.
I read a friend’s blog today; she talked about giving a standard response when people ask her how she is.
Something, I recognise very well, especially when I had to stay in bed 24/7 in august 2008 because of a large pressure sore.
I could not cope with talking about how I was doing, I was simply too scared by the way my disease was progressing.
Frightened by how quickly I had developed such a nasty wound, which no one knew how long it would take to heal.
I often said I am ok when I was not, just did not want to get into every detail of how I was doing.
Sometimes I just wanted to get away from the whole situation, not constantly talk about my MS or how I felt.
It has taken away so much that I did not want it to take everything and dominate every aspect of my life, but of course it does.
I did learn after a few months in bed that constantly saying I am ok was pushing people away.
This got me thinking, I realised that for all sorts of reasons I needed to be open.
In early February 2009 I started to post everyday, this helped me to talk about what my life was like.
It gave me a place to communicate, allowed me to meet, make friends, give and get support, be part of the world.