Friday, October 30, 2009
Optimistic now that I can sit again.
Yesterday was the big day that the adaptation was finally brought around, only realise now how much I had been anticipating the appointment and how worried I had been.
Had not realised how worried I had been but know that I have been and am no longer worried as I slept very well last night.
What amuses me today is that I was lying there last night convinced that I would not sleep and promptly fell asleep.
Just before they all arrived yesterday I felt terribly nervous and then they all got here and I was instantly ok, just wanted to get on with it and sit.
I was sat in the chair, Elwin had a good look and Ludwine made some adjustments and Elwin made some marks where he needed to reduce the mould.
At this point I was put back in bed and after some adjustments; I was hoisted out of bed again and sat back in the chair to see if there were more adjustments needed.
Elwin made some more drawings of the parts that needed adjusting, and Jenny arrived with the pressure gauging cushion which was extremely useful.
It pinpointed exactly where the pressure was, and it turned out to be exactly where the wound had been.
Ludwine and Jenny gave Richie a master class in how to recognise how I am sitting and how to rectify and correctly position me so that I am sitting properly.
It was a very tiring day, all the anticipation and then twice being hoisted in and out of bed and at the end of the afternoon Elwin had to take the chair and the adaptation away with him to finish it off at his work.
Shame as had wanted to sit up for awhile after the appointment, had wanted to leave the building and go downstairs and round the side and say hello to Willes.
Still never mind, the wheelchair and adaptation was back here early this morning at 8.30 and this afternoon I can sit in it and gradually get the hang of sitting again.
Am so curious how it will feel to move around of my own free will and without someone else pushing me.
That is quite an exciting thought that I will be able to move from room to room when I want to.
Not sure that I can actually cope with visualising that idea, think it will make more sense when I do it rather than try to visualise something that I have not been able to do for over 14 months now.
Right now I am looking forward to sitting again this afternoon, in fact I am really looking forward to sitting for an hour a day to start with, and hope that it goes exceptionally well and by next week I will be able to sit for two hours.
Not sure whether there is enough time for me to build up enough hours sitting in the wheelchair so that I can go to the gig on the 21 November.
That is why it is such a shame that I did not get the adaptation fitted onto the chair earlier as every day really counts in order to build up enough time sitting without ant negative affects on my bottom.
It would upset me a lot if I am not ready to go the concert on the 21 November, but it would upset me even more if I developed another pressure sore that turned into a deep open wound.
That would for sure be much worse indeed.
For now I am optimistic that I will be able to sit up for four hours by the 21 November.
Optimistic and looking forward to what happens next and new adventures to be had.
It is Friday again so quickly, this time it it is the day after getting the adaptation, the day my life starts again and the day when I can decide when I want to sit.
Hope everyone has a good day too.