About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Sunday, October 25, 2009
A Bright Sunny Day.
Trinidad.
The clock went back last night, so we are now living in winter time, not my favourite time.
Not much that I can do about it so this year I will not bore everyone plus myself with going on about how much I hate winter daylight saving time.
In the past I would not change the time on my watch preferring to work out each time what the time really was.
Perhaps finally I am coming to terms with the idea that things that I can not change will not get my attention.
Could be good for me if I have learned this, as I do use up valuable energy on things I can do nothing to change.
Think that someone like Dorthe would have her card well marked these days, she was an example of a friend who one ends up tolerating because of a vague memory of friendship.
When I first knew her my self confidence had taken a nose dive, this did leave me open to peoples abuse
My self esteem has taken quite a bashing from the MS but I have managed to get to grips with that and really have understood that MS does not define me.
I am alright; I am still quite a woman even if my body won’t cooperate these days, it is not easy to be so handicapped.
As soon as I wake up in the mornings I am confronted with my bodies inability to move and the first spasms happen and my arms clamp shut as I yawn, and again I am aware of the pain.
I do my arm exercises, when I get my arm straightened out, which does seem to help, am sure that the exercises have helped me retain the use of my arms and hands.
Today has been a bright and sunny day, nice to look out of the window on sunshine and birds hopping about on the bird feeder.
Have to relearn to love this time of year again and I will once I am back outside and able to feel the wind and smell the outdoor scents.
Looking forward to the prospect of being liberated from my bed and tasting the delights of the outside world once again.
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10 comments:
I remember my daughter and I hated losing an hour in the fall. Going dark earlier never made sense to us. We too prefer the "other time".
I didn't know it was time to change tho. Blah.
Hi Sherry,
Thanks for coming by, it is 7.30 and it is very dark.
Your time does not change until next week I think.
Keep warm.
Love,
Herrad
Watcha H@R, Ahh yes the clocks going back -forward- nerver quite understood it But look at it this way from the 21st Dec the days get longer. Glad the Sun been shining there hope it Shines when we come to visit really looking forward to seeing you folks. Stay snuggly GX
On the North West coast of the U.S., Where Tacoma is, it is getting dark at 6:15 PM. We push the clocks back an hour next weekend so it will be dark at 5:15, followed by another 7 1/2 weeks of continued darkness until the Winter Solstice, When oh so very slowly it starts to brighten again. No, I love the Fall, Winter, not so much anymore. I used to when I could go out and build a snowman or even shovel the walk, but those days are gone. I have no decent balance left.
Still I like looking out the window at the bird feeder, and keeping cozy with the fireplace stoked - which my hibby is taking his sweet time to sweep the chimney, etc. Hopefully that will happen on the next dry day - when ever that may be. Actually, it wasn't too bad today, but I had to go in for a treatment. Ah, patience. Isn't that our buzzword for living with MS?
I tend to beat myself up because of what the MS has done to my (now gone) outside career. Always thought I'd be out there working and running around. I guess maybe what I'm learning is to find other, slower ways to feel productive. And to know that that's okay.
I totally get that feeling about the self-esteem, though.
I think it'll be amazing for you to get out in that crisp air, Herrad. I'm always rooting for ya!
XOXO
Jen
Hi Gareth,
Lovely to see your comment.
Somehow not so sad the clocks went back as I have been in the past years.
Know that it will not be long and the light will be back and then more sun.
Two months is not too long.
And first the extra sunshine of your visit.
Hi Webster,
Lovely to see your comment, thanks for coming by.
Very noticeable tonight that it was alot darker.
Still as Gareth reminded me it is only two months and the days will slowly start to get longer again.
I too used to enjoy the autumn and winter more when I could go for a walk or throw a snowball.
Patience I never ever had any before how about you?
And now it is practically our middle names.
Hi Jen,
Thanks for coming by, lovely to see your comment.
Me too I thought I would still be at work and able to get out and about.
It has been difficult for me to rebuild my self esteem, guess it is the same for us all.
We all have to do so in order to be able to live at ease with ourselves,
Thanks dear friends for coming by, listening to Smokey Robinson on the Electric Proms on BBC 2 at the same time.
He is an amazing singer.
Hope you all have a good start to the week.
Love,
Herrad
We have daylight saving also and it drives me nuts. Ours will change next week. Herrad I think of you so often. You and Mort and some of Mort's friends. I can relate so well to the awful things that take over your body. I do remember it well, everything from the spasms and losing up plus he lost the and his strength and just folding. It Is really tough to deal with that loss and liker you he tried everything to get better I has my son for 42 years.
Hi Herrad! Our daylight savings starts next weekend on Halloween night. I don't mind this time of year actually, but then again, I'm used to winters up North and it's a nice change for me to have the 4 seasons! I'm noticing lately that the mornings are dark when I wake up! That's a little freaky!
You have only 4 days before you can sit in your wheelchair! Any plans to go outside this weekend?
A lady with horrible behavior handled well by a lady with great grace.
Hi Lucy,
Thanks for coming by and sharing your feelings about your son.
Daylight saving drives most of us nuts, think it puts too many kids in danger going home in the dark.
Hi Rain,
Thanks for your visit and comment, I shall do my best to like this time of year again.
One thing I have not liked is I can't go and do Christmas shopping on my own anymore.
So can't surprise Richie these days.
Back to the drawing board.
Hi Steve,
Thanks for coming by and for your supportive comment.
Sad story, shame after 12 years of knowing her,but could not tolerate her behavior, certainly not after she read the diaries.
What a betrayal of trust.
Thanks for coming by all of you and leaving a comment. Hope today is a good day for you.
Love,
Herrad
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