Friday, October 16, 2009
Still Basking In The Good News From Yesterday.
Still basking in the after glow of the good news about my wheelchair adaptation being ready on the 29 October.
Harm from Welzorg will be attaching it to my wheelchair and I will be placed in the chair so that Elwin can check that it is supporting me adequately.
Ludwine will be there also to check that everything is correct, that my pelvis is sitting well and can support my torso.
Jenny from the Technical department, from the RCA will be there to check that the pressure of me sitting is well distributed.
If not the seat will have to be adjusted until it supports me so well that there is no danger of badly distributed weight and therefore too much pressure on any part of my bottom.
If there is this will cause a new pressure sore, which we all want to avoid at all costs.
Feel quite confident that we have everything in place to make sure, in as far as it is possible, to ensure this situation does not happen again.
Once I get the chair then the work will start of gradually building up my capacity to sit again.
The first times I will try and sit for an hour and if that has no negative effect, then we can put the time up.
I will still be spending most of the day in bed, except now I will be able to get up and sit in the chair.
Really hope that by the 21 st of November I can sit for at least 3 hours 4 or 5 would be even better.
Need the extra time as the Mobility bus is often late, we have had to wait up to 2 1/2 hours in the freezing cold to be picked up and taken home.
Looking forward to this new beginning, every day bringing new prospects of things getting better.
Better in the sense of a broadening of my world and my perspectives, I know that my MS will not improve, but my life can and will get better.
Feeling very optimistic that once again I will be able to be a part of life and not just an observer in my bedroom.