About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Tuesday, November 10, 2009
Nice Visit Today.
Great visit from our good friend Marianne this afternoon, she bought me a delicious prawn filled crispy roll from Surima Suriname Takeaway.
They never seem to believe her when she tells them to put alot of hot pepper sauce on the sandwich; luckily we have pepper sauce here.
Since I posted about LDN yesterday I have had several comments, seems not everyone has the same reaction to this drug.
Some it helps and others not at all and one person actually got worse; the Dutch website MS Web has been very useful.
Annemiek who reads my Dutch blog told me to go to the MS Web Forum where I could read a variety of people’s comments about LDN.
The forum is very good, quite a few people have left comments about their experiences with LDN, seems there is also a diet that some people also follow.
The other good news is that doctors will prescribe it here that is reassuring, did not like the idea of doing it without medical support.
Have heard from one doctor from the OLVG hospital today, suggesting a telephone appointment to discuss LDN.
Which I will do and hopefully I will hear from the other doctors so that I have a wide pool of information.
Really need to research this thoroughly before making a decision whether or not to try this treatment.
Would appreciate if you will carry on leaving information about LDN as it would be very useful for me to be able to have as much information about this treatment as possible.
As soon as I/ we have made a decision I will post about it and tell you how the decision was made.
Labels:
good friends visiting,
LDN,
MS,
MSWeb Forum,
Surima Suriname Takeaway
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9 comments:
Hi Herrad!! Lovely photos today!
:)
I'm so happy you had a great visit, the prawn roll sounds delicious! You may have noticed I'm quite AWOL these days, lol...I found a new park with hiking trails!! I've been 2 days in a row, I just love it! Hope you are enjoying your evening!
Hi Rain,
Lovely visit today from Marianne, she is a lovely friend, great sense of humour.
Glad you have found some good walks, good thing to do.
This evening has been very relaxing, hope yours is too.
Thanks for visiting, have a good Wednesday.
Love,
Herrad
mailing you a link.you may already know the site herrad.i actually have to find it first lol.but i will as soon as poss.tc xx
Glad you had a nice visit, and the prawn roll sounds yummy!
HUGS
Hi Mort,
Thanks for coming by, the link you mailed me is useful thanks.
Found some LDN ifo right away.
Hi Stephany,
Marianne's visit was very enjoyable and the prawn roll was very yummy.
Thanks both of you for coming by, good to see your comments.
Hope tomorrow is a good day for you.
Love,
Herrad
Hi Herrad, here is a blog you may be aware of not sure:
http://www.fiikus.net/?medicine
She used(uses?) LDN
Here's another with a news program you tube and a lot of info
http://www.lowdosenaltrexone.org/
HUGS
hi herrad! http://www.youtube.com/watch?v=CVpjsDK0LPA
that's a good youtube link about ldn...i've always heard of this drug, but don't know anything about it...but it sounds good! hope you can get that link!! just copy & paste it in google or bing or whatever search engine you like!
Hi Stephany,
Thanks for your visits and the links
.Have alot of LDN info to read now which is great.
Hi Libby,
Lovely to see you here too, thanks for the link.
LDN sounds good,some it helps well and others nothing.
It is neither proven nor disproved.
Thanks for coming by and leaving info and links to more info on LDN.
It is a mystery as yet, waiting to hear from my GP this week and hopefully from the neuros too.
Have a good weekend.
Love,
Herrad
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