About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Sunday, August 08, 2010
New Plans Again.
Myrtille Henrion-Picco.
My recent skin damage is healed once again; luckily it only took 6 days this time, so only b.6 days in bed.
That was good as I would have hated to spend even longer in bed as it really is not good for my body.
I have been sitting since Friday, the first time for 40 minutes; it was very nice being in the front room in my wheelchair.
Yesterday I sat for 1 hour and 30 minutes with no problems; it was wonderful to be in the front room with my darling Richie, we watched Leeds v Derby, a good game
No wonder that I have been so depressed; really not surprising after so long in bed, thius month it is two years on 21 August.
I do my very best to stay optimistic, which mostly works well, really have learned to stay here and now.
Have to confirm this everyday, so I do not forget, gradually lit is happening automatically, what I am finding difficult is to stop reproaching myself for things I supposedly did not do or not well enough.
It is not productive and only drains me of energy I could use for other things; hope to get out of that habit soon.
It is a real shame that 3 lots of skin problems, skin torn open in January did not heal until April, then another incident in May which took two weeks to heal, luckily it only took 6 days to heal this last time.
That plus the slowness of ARCA/Welzorg to press ahead and get my arm supports properly adjusted have I fear cost me the summer.
They took 3 months to finally glue a longer arm support on to my existing but not useful arm support.
Now it seems like the summer has gone and an early autumn has started already, plus we noticed that it is slowly getting darker earlier at night.
What a shame had hoped for a warm summer like last year can see now that it was pure luck last year.
Have lots of plans now my arms and shoulders are well supported to go further than our street or the top of the road to the Kinkerstraat.
Planning to go to the market this coming Thursday or Friday, will be brilliant as the last time was 19 August 2008.
Who knows we might even get to the Paradiso for a concert in November, maybe to the Basjoe.
Wonderful to be planning things again, hope to have a life outside of my bed.
Subscribe to:
Post Comments (Atom)
7 comments:
Hi Herrad,
I hope lots of days out of the bed and outside are on their way too.
HUGS
Hi Stephany,
Hope for lots of time out of bed and going places.
Can't ever sit all day in one go as my skin is too sensitive.
Love
Herrad
you are always giving all of us a huge lesson Herrad.
thank you for being this amazing woman you are.
Love,
Ana
Hi Ana,
Thanks for your visit and sweet comment,
You are pretty wonderful yourself dear Ana.
big hugs,
Love,
Herrad
Herrad, I think it is a good thing that it is cooler outside. MS and heat don't play well together. (I know, I love the warmer weather as much as you do - but it does not like me.) So, just be extra mindful of your bum, and you will be at that concert this November! But first, to the market!!
Blessings.....
Good to read of your healing nicely and sitting for long periods of time.
p.s.
I added a few pictures of the plants i.e. mother-in-law tongue in Trinidad we call it Lash.
Have a wonderful week
Hi Webster,
You are right it is better for us that it is cooler than it was, just not keen on signs of early autumn we have been having.
The weekend was rainy, lots of it dark and dreary.
Today is warm, sunny and glimpses of blue skies.
Looking forward to the Drive by Truckers in November.
Hi Rhapsody,
Thanks, the healing is going well am enjoying sitting again especially being in the front room with darling Richie.
I went to your blog right away to see the new photos.
The lash looks lovely good to see do miss seeing them.
Thanks both of you for coming by, good to see your comments.
Feeling cheerful now after sitting in the front room.
And on target for going down the market this week.
Love,
Herrad
Post a Comment