Yesterday I said I would put this whole situation with the support cushions out of my head until next week.
I wish I could, but I can’t because I can no longer sit with the improvised support structure Richie has constructed around me.
This has worked very well but this last week it has become impossible, for me to sit upright for more than a few minutes.
Richie has adjusted me many times already but within a minute I am hanging to the left, this hurts me alot, it particularly hurts my neck.
That is because it feels like my neck has to stop me totally collapsing to the left; this puts a terrible strain on my right side.
Difficult to put it out of my mind when not having the support cushions has now become a big problem for me.
Doing anything while hanging to the left becomes pretty impossible typing is easier than eating or drinking.
It has been suggested that I contact the local newspapers or TV, sadly I don’t think the local paper or TV would be interested.
They were not interested when we were waiting for so long for a new accessible apartment, and I was stuck indoors on the second floor without a lift.
I was only able to go out if I was carried by a couple of people from the mobility bus, twice a week I spent a few hours at the rehabilitation clinic.
From June 2006 until we moved in May 2007 I was spending most of my time indoors, by the time we got a place with a lift I could not go out alone anymore.
Waiting has become a central theme of my life, I have to wait for everything and I do not have the time, not with a progressive disease.
It really is here and now for me.