Monday, October 10, 2011

A Good Start To The New Week.

Today I got the new wheelchair seat, it is very good, it makes a big difference, nice to be sitting straighter and higher in the wheelchair. 

Lovely to feel I am more stretched out, I no longer have a potbelly, actually I never had one, it looked like I did because I couldn’t sit up straight enough.

Shame Johanneke, my previous occupational therapist, had not noticed that I needed more support, which a new seat would have provided.

Other things should also have happened last year, such as trying out the electric arm support, it supports your arm so you can eat, read, type.

The IPaq gadget I have that opens the doors, adjusts the bed, turns on light, TV, operates the telephone I should have got in 2008 not November 2010.

Johanneke it seems did not research the support cushions well; she did not look for another better solution then Quattron who don’t have suitable support for me.

I spent months waiting from January until July to get the support cushions; since I have them they have been ok but not as useful as I had hoped.

Maurits does not think the cushion supports me; he suggested a couple things we can do to help me maintain a sitting position, while he finds a better solution.

Edith, my council mobility advisor was here too, she noted that the wheelchair arm supports are too high, neck support needs adjusting; she will see they get done, a good start to the new week.


Rhapsody B. said...

hmmmmmmmmmmmmm....i am glad you are feeling like progress is being made on your behalf.

It would seem that with all that you are going through that the companies can make things easier by being more proficient.

Have Myelin? said...

I am so glad you are able to have adequate support now. And frustrated it took so long. Time is so precious to us!

I am glad your week is starting off well.

Anonymous said...

always a safe 'road' and week ahead.

Herrad said...

hi rhapsody,
i have got the new wheelchair seat, i have only waited since May.
now i will have to wait for the rest.
progress is always too slow.

hi sherry,
the new wheelchair seat is good, but you are right it takes too long, time we don't have.

thanks you 2 lovely friends for coming by.
i was so glad to get the new wheelchair seat, i hope the other things will happen soon.
but i know it will take ages, i wish i could get what i need quickly so i would not have to deal with these people anymore.
i am starting to feel quite miserable how much time it takes to get things.
so frustrating!!! grrr no understanding of progresasive disease.

Herrad said...

hi robert,
thanks, i hope for you too.

love lives in the kitchen said...

dear herrad that you week starts in a good way and that the new wheelchair is more comfortable. sending you hugs from milan,

Herrad said...

hi justyna,
lovely to see your comment, thanks for coming by.

Karen said...

A good start indeed. It seems as though your new therapist is getting the ball rolling Herrad.

Herrad said...

hi karen,
i hope so i really do.
thanks for your visit.

Patrick said...

'a good start' is always great to read. Cushions, supports, etc make a world of difference. Always so strange to me that therapists are so inconsistent in seeing what is needed.

Caregivingly Yours, Patrick

Herrad said...

hi patrick,
thanks for your comment and visit.
most of the people don't understand.
ruud from summit, the company who made my wheelchair is an exception.
i thought maurits, my occupational therapist, understood on monday that i urgently needed better support to sit in bed.
he was going to find a company that would help me with my support problem.
great............. then he sent me a link to a company that have cushions to help you lie better not sit.!!!?

Have Myelin? said... lie down and not sit? How frustrating!!!! Argh....

Herrad said...

hi sherry,
its very frustrating i couldn't believe it.