Today I got the new wheelchair seat, it is very good,
it makes a big difference, nice to be sitting straighter and higher in the
wheelchair.
Lovely to feel I am more stretched out, I no longer
have a potbelly, actually I never had one, it looked like I did because I couldn’t
sit up straight enough.
Shame Johanneke, my previous occupational therapist,
had not noticed that I needed more support, which a new seat would have provided.
Other things should also have happened last year, such
as trying out the electric arm support, it supports your arm so you can eat,
read, type.
The IPaq gadget I have that opens the doors, adjusts
the bed, turns on light, TV, operates the telephone I should have got in 2008
not November 2010.
Johanneke it seems did not research the support
cushions well; she did not look for another better solution then Quattron who
don’t have suitable support for me.
I spent months waiting from January until July to get the
support cushions; since I have them they have been ok but not as useful as I
had hoped.
Maurits does not think the cushion supports me; he
suggested a couple things we can do to help me maintain a sitting position, while
he finds a better solution.
Edith, my council mobility advisor was here too, she noted
that the wheelchair arm supports are too high, neck support needs adjusting;
she will see they get done, a good start to the new week.
13 comments:
hmmmmmmmmmmmmm....i am glad you are feeling like progress is being made on your behalf.
It would seem that with all that you are going through that the companies can make things easier by being more proficient.
I am so glad you are able to have adequate support now. And frustrated it took so long. Time is so precious to us!
I am glad your week is starting off well.
always a safe 'road' and week ahead.
hi rhapsody,
i have got the new wheelchair seat, i have only waited since May.
now i will have to wait for the rest.
progress is always too slow.
hi sherry,
the new wheelchair seat is good, but you are right it takes too long, time we don't have.
thanks you 2 lovely friends for coming by.
i was so glad to get the new wheelchair seat, i hope the other things will happen soon.
but i know it will take ages, i wish i could get what i need quickly so i would not have to deal with these people anymore.
i am starting to feel quite miserable how much time it takes to get things.
so frustrating!!! grrr no understanding of progresasive disease.
love,
herrad
hi robert,
thanks, i hope for you too.
love,
herrad
dear herrad that you week starts in a good way and that the new wheelchair is more comfortable. sending you hugs from milan,
justyna
hi justyna,
lovely to see your comment, thanks for coming by.
love,
herrad
A good start indeed. It seems as though your new therapist is getting the ball rolling Herrad.
hi karen,
i hope so i really do.
thanks for your visit.
love,
herrad
'a good start' is always great to read. Cushions, supports, etc make a world of difference. Always so strange to me that therapists are so inconsistent in seeing what is needed.
Caregivingly Yours, Patrick
hi patrick,
thanks for your comment and visit.
most of the people don't understand.
ruud from summit, the company who made my wheelchair is an exception.
i thought maurits, my occupational therapist, understood on monday that i urgently needed better support to sit in bed.
he was going to find a company that would help me with my support problem.
great............. then he sent me a link to a company that have cushions to help you lie better not sit.!!!?
love
herrad
...to lie down and not sit? How frustrating!!!! Argh....
hi sherry,
its very frustrating i couldn't believe it.
love,
herrad
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