Yesterday was a strange day after the appointment fell through because of the mobility bus leaving without us.
Suddenly everything went flat, we were so up and ready to go to the important hospital appointment, once that was taken away so cruelly we felt deflated.
Shame that happened, especially after all of Richie’s good work, getting me up showered and dressed ready for 09.30.
I put in an immediate formal complaint and was informed right away that the driver was in the right, and we were in the wrong as we should have been ready 15 minutes before the time booked.
I was told that it was the rule to be ready 15 minutes before the booked pick up time, when I asked if I could see the rules, Rinie Isselman, from Stadsmobiel sent me the link to their website.
Went there but could not find much in the way of information and certainly no rules, e-mailed her asking where the rules were.
Rinie promised to send me the rules, my comment was that was nice of her but surely if there were rules they should be on the website for all to see, not hidden away secretly,did not get any response.
The amount of times I have had to wait for this bus in the past was too many to mention, been totally forgotten for hours outside in freezing weather.
But whatever they, the Stadsmobiel, are never in the wrong despite keeping people waiting for hour’s grrr!
Here is there e-mail address:
Felt very tired and washed out yesterday afternoon and evening and noticed how badly my hands and arms were functioning well at all.
So depressing thinking about my arms and hands, hate the feeling of paralysis which is slowly creeping up my arms.
Horrible to feel this happening and so soon but not surprised that is MS, typically I am to get the Perspex table for the wheelchair next week just when I am starting to lose my hand and arm functions.
Typical procrastinating pen pushing burocracy!