Primary progressive MS affects about 10 to 15 per cent of people diagnosed with MS.
It has this name because from the first (primary) symptoms it is progressive. Symptoms gradually get worse over time, rather than appearing as sudden attacks (relapses).
In primary progressive MS, early symptoms are often subtle problems with walking, which develop – often slowly – over time.
Whatever symptoms someone experiences, the way they progress can vary – from person to person and over time. So, although in the long-term symptoms might get gradually worse, there can be long periods of time when they seem to be staying level, with no noticeable changes.
This type of MS is usually diagnosed in people in their forties or fifties – older than the average age for relapsing remitting MS – but it can be diagnosed earlier or later than this.
Equal numbers of men and women have primary progressive MS. This is different to relapsing remitting MS, where more women than men have the condition.
People with primary progressive MS can experience many of the same symptoms as those with relapsing remitting MS.
DiagnosisThe diagnosis of any form of MS can take a long time. As primary progressive MS is most often diagnosed in people in their forties and fifties, when people are more likely to have other conditions which could cause mobility and walking difficulties, it can also make it harder to reach a diagnosis.
Managing symptomsThere are many treatments and ways of managing symptoms which can also help manage secondary progressive MS.
Frustratingly, there isn’t yet a successful treatment that affects the course of progressive MS.
Research continues in this vital area. See the research section of the site for more information