Wednesday, September 23, 2009
The here and now..... is blue sky and sunshine and very pleasantly warm.
Just sent an e-mail to Victoria Derbyshire to her Radio 5 Live program, she had Debby Purdy on the show.
Listen to you daily in Amsterdam, glad Debby Purdy has got the clarification she needed to be able to enjoy everything she can while she still can.
Shame that there is not an informed debate about euthanasia in England, instead of emotional discussions which scares people away.
The recent debate was dreadful as it argued that handicapped people would be at risk of being killed by their carers.
Shame people are totally refusing to understand that this is not about being handicapped; this is about people like Debby and me who live with intolerable levels of pain with a progressive disease.
Whose future perspective is increasing pain and disability, no mobility, not being able to talk, hear, swallow or breath independently, where physical contact is painful..
I am fortunate to live in The Netherlands where I can get assisted euthanasia from my general practitioner when I feel that I can not go on, and this can happen in my own home.
After an incredibly rapid progression from walking to being wheelchair bound by the November 2006 and needing fulltime care by the summer of 2007.
I discussed with my partner my desire for euthanasia, as did not wish to be in terrible pain, unable to see, talk or swallow.
He agreed with me that euthanasia would be the option rather than a life of pain and 100% incapacity due to the progression of my MS.
We discussed this with our GP and I drew up a document which our doctor has signed and my partner and I have signed, now I have to let her know when I have reached the point where I do not want to be alive anymore, then she will help me to die peacefully here at home.
Since this has been organised I can concentrate 100% on living and enjoying everything that I can enjoy, I do not want to die, and I want to live for as long as I can with my darling.
Before this was organised I was living in allot of fear about my future and the progression of my disease, no doctor can give me a prognosis so having the document with my doctor gives me the reassurance to live now.
Debby has progressive MS like I do, she recently asked for clarification from the Law Lords when family and friends would face prosecution.
She needs to know if her partner would face prosecution if he were to help her go to the Dignitas Clinic in Switzerland to die.
If he were to face prosecution then she would go to Switzerland while she still could get there on her own.
That would mean before she needed to go while she still can do the trip on her own, so in fact the English law would end her life earlier.
Real shame so rather than saving lives they end in wasting lives which otherwise could have been better spent enjoying right until the last moment.
Since Richie and I have discussed this thoroughly with each other and our doctor we do not need to think about it all the time and we can both get on with our lives.
In England some would find this all abit too much it would be too worrying, for me it has meant that I no longer have to worry about what if and when.
Realise that this has taken away the uncertainty and the worry, I did think about it quite abit just after it w as organised.
Cried alot thinking about dying, not being here anymore, not being with my darling Richie, can’t write this without crying now.
But was soon able to leave it, and concentrate on living in the here and now, which is much better, that way I enjoy my darling Riche right here right now.
Right here and right now is I have found the best way to live it concentrates the mind on what is essentially important.
The here and now, which right now is blue sky and sunshine and very pleasantly warm for the first day of autumn.
Richie is playing his new banjo ukulele which is very pleasant for me
Hope everyone can enjoy the here and now today.