Monday, February 08, 2010
A friend in Scotland told me about The Revive MS Centre which is a great resource in Glasgow and the West of Scotland.
They have physiotgherapy, aroma, reflex, hyberbaric, counselling and socialising amongst a list of other activities.
There are MS Centres like this one in all major towns throughout England, Wales and Scotland.
At all the centres the following is available:
Drop In Centre
Incontinence info and advice
Hyperbaric Oxygen Chamber
the MS Centres sound excellent sadly there is nothing like that here.
There is nowhere you can drop by and meet people or make use of resources.
There is the Dutch National MS website
Which gives you some information but little else, it is not a meeting place not even digitally.
Here the MSVN Amsterdam website can't be used for anything but to read.
They seem to have less on their website in 2010 then in 2006.
I tried to put a notice about starting a Skype groups for thosed who are not mobile, who wanted to talk with a group of MS’ers, they would not place it.
In Amsterdam they organise a monthly cup of tea for 2 hours from 3 to 5 pm at the offices of the Amsterdam Handicapped Organisation (SGOA) from September to June.
They also are supposed to have specific themes for these get together’s, this year there is only one about tax and what you cam claim back.
Once every two months there was a discussion evening where a topic was presented and discussed.
The people that go are one small group who live nearby, they also used go to the monthly swimming session.
The MS Swimming Group only catered for those that still have some mobility.
The swimming pool is specifically for disabled swimming yet had nothing to hoist people neither in or out of the water nor from bath chair to changing table and wheelchair.
Just could find any mention of swimming on the website, so think that has stopped too.
MS Centres would be brilliant here and well used to; in my neighbourhood there are 16 people with MS that I have heard of.
What a shame that the MS Society website is just that and does not offer any tangible support, how can you be supportive without doing anything.
Maybe I am cynical but it looks like a nice job that does nothing apart from make those volunteering feel so good.
‘’ Oh I work voluntarily for MSVN ’’
I am no longer a member of the National MS Society found it had nothing for me whatsoever.