Wednesday, March 25, 2009
Jacob van Lennepkade, Amsterdam
These pictures are of the canal at the end of our street Richie took them yesterday on his way to the Vondelpark.
Today feeling reasonable after waking up from an incredibly deep sleep to totally wide awake and in pain.
Felt extra painful today and took three bags of thc before the pain subsided and I was able to relax.
Now do still have the painful twinges but notice that they have moved around again, quite a relief to me.
Always think oh dear that's unbearably painful perhaps need to tell the doctor about that only for the pain to decamp from my chest to my elbow.
A major problem is suddenly a painful cramp in my lower arm and not a chest and breathing problem.
Do not know if wandering pain is common thing that everyone experiences, know now that rapid temperature changes is one of the MS effects.
As are spasms and cramps and all the strange tingles and electric currents and the pricking and slashing pain as well as feeling on fire.
Major one is the MS girdle, that feeling of having a corset on that is being pulled tighter.
The other thing that I have are strange sensations on my head and scalp best described as the hairs on my head standing on end.
Oh well it is a strange illness really hope that someone will find the way to stop the progress of the disease and from that come up with a cure and prevention.
I know that even if something were found now that it would not help me wish it could as am not sure that I can cope with this steady decline that is happening to me.
Takes so very much to keep positive but its my only choice as to do anything else would mean more pain plus depression which I hear is a major factor with MS.
My choice as always is to be positive and to make the best of it all and to enjoy today.
Thanks for all your support it really does help, it is good to give and receive support good to be part of a community, a supportive network.