Saturday, May 23, 2009
It is a hell of an altered life since the MS diagnosis, discovering that life is suddenly very different like Kimberly at My Journey With MS.
I am also finding it difficult to come to terms with the fast progress of the disease.
Yesterday felt really sad a few times during the day and I cried again after waking this morning from a deep slumber.
Got quite concerned at all the tears in the last few days until I realised that it was no wonder that I am crying alot, it was 9 months on Thursday that I have been in bed.
Noticing last night how very difficult it is for me to sit was a shock at seeing how contorted and somehow crunched up and hunched I looked in the shower chair.
It was not very comfortable sitting and using the laptop while on the shower chair.
The angle I sat at was not good for me, recently after going to the bathroom we have our meal and then I use the Motomed to exercise my legs.
After that Richie puts me back to bed so every day I get a couple hours out of bed and sitting differently.
Going too really up the pressure this week on the responsible people to ensure they get the adaptions right on the chair so that I can sit safely.
After seeing how I am sitting makes me think that I will need not just an adaption but a different chair.
Time I think to hand back the Speedy, my pride and joy, really lovely nippy machine plus looks so smart.
I have enjoyed it tremendously zipping around the market and the Vondelpark as well as local shops, quite a few had good access and all are very helpful and friendly.
Think that it is time to get realistic and accept that I will never use the Wolturnus wheelchair or the Speedy again.
Then it will be time to see what sort of new chair I need and what is available.
I wonder if there is a power chair that I can operate and also someone else can also operate on days that I can not.
Very curious whether anyone knows or has heard of a power wheelchair like that.
Once my tears were dried this morning I felt better, feel abit sick all the time from the antibiotics.
Richie took a urine sample round to the doctor who found that I have a bladder infection, so have been taking antibiotics since Wednesday.
One more tablet tomorrow then the course is finished and the nausea and extra feeling of tiredness will be over.
Meanwhile it has turned into a scorching day, as soon as I have posted will get Richie to hoist me out of bed and into the shower.
Be nice to get all that done earlier rather than waiting until later and perhaps I will be able to relax better.
Maybe even a moment on the balcony to enjoy the mild weather and feel the warm breeze.
Hope it is a good day for everyone.