Tuesday, October 23, 2012

Charting The Progression Of My MS.

Roberto Matta.

As soon as I woke up I felt the full range of MS sensations, it felt like small electric shocks were happening up and down my body.

While this was happening it also felt like I was on fire, at the same time my arms tightly folded against my torso and my legs were having spasms.

not a pleasant way to wake up but this is what happens just about every day, so while the sensations are still very strange, they have become very familiar.

It is weird feeling these things every day what is even stranger is witnessing the progression of my MS.

Horrible to see how far it has got, sometimes it makes me feel like I'm being squeezed like a tube of toothpaste.

Gradually my body is becoming more paralysed and less able to function.

It is strange to be keeping a log of this happening to me, all I can do is write about how I feel and think about what is happening to me right now.


Unknown said...

Herrad, you CAN write and that is a plus. Sharing helps.

Caregivingly yours, Patrick

soulsoprano said...

Dear Herrad, The turmoils of life have prevented me from reading your blog lately. I am excited and glad to see you still very much a part of the internet, world, and your own world as well. I imagine every new challenge comes with a bit of a cost, another small piece of "you" you have to say goodbye to, to give up. It is always important for us to remember that who we are is far more about our spirit, and the love we share among one another, and the legacy that leaves behind, than any of the physical things we can or cannot do. I read your words and they move me to tears, not of pity, but of pride in your womanhood, your refusal to become dormant in a world that seemingly shrinks around you, at your triumph and insurmountable spirit. My own life is in such transition right now, so many unknowns ahead, but I read your blog and I am inspired that there is no obstacle too great that cannot be overcome. I have small mountains to climb compared to the Everests you have already conquered, my friend. Thank you for stickiing around so I could find you again.

Much love,

Kristen <3