About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Wednesday, July 28, 2010
Sad News And Good News.
My wheelchair was collected this morning just before 09.00 when a friendly Welzorg employee came by.
Finally the arm rests are being done so that when I go outside I will have good support, shame this was not done much sooner.
My case manager said it was a pity that there had been a logistical problem and my arm rests had not been adapted when they should have been done.
It was good she mentioned this guess it is as close to an apology as I will get from burocrats, so will be happy with that.
Just a shame that she and the two others involved with the adaptations all went on holiday at the beginning of June.
Real shame as the lack of arm support restricted how far I could go from our apartment; it meant that I got no further than our street.
Would have liked to have gone further and I will do so before too much longer, in fact this could happen tomorrow when the wheelchair comes back, hope it is warm and dry like today.
I am confident that I will be sitting as Richie says the skin abrasion has healed now, we are waiting for Ton Peeks to visit and confirm this, he will be here any minute now.
For once not nervous on the contrary very much looking forward to hearing Ton says that the skin is looking good.
Glad that Ton’s prediction last week was correct, am as happy as I would have hated to have to be full time in bed for too much longer, two weeks has been long enough.
Two friends came by for a visit yesterday which was extremely pleasant; it was good to see Anne and Cecile.
Cecile told me some sad news that a friend Leo had died from bone cancer, Richie and I were shocked to hear that beautiful Leo was dead.
Leo and James run our favourite coffee shop the Basjoe on the Kloveniersburgwal 62, on the ground floor overlooking a canal in the oldest part of town, the Nieuwmarkt.
It is a nice relaxing mellow place run by two friendly men, very sad to think that Leo is no longer greeting visitors with his gorgeous smile.
Was always a pleasure to be there and watch them being very kind and helpful to tourists, often spotting quickly when someone needed a sugar boost by advising they drink a cola or a sweet coffee.
The Basjoe has a large group of faithful international visitors who return every time they visit Amsterdam, they have a Face Book page where we left sympathetic messages about Leo.
Leo and James have been helpful to many over the 21 years since the Basjoe opened in 1989.
Both Richie and I were taken there by a mutual friend who lived in the neighbourhood and was quick to spot the new coffee shop
.
We have visited regularly since then and until 2006, in 2007 only a couple of times, since I have been in bed I have phoned them often.
Phoned yesterday and spoke to James who sounded very down which is not surprising as him and his brother Leo have worked together since 1989.
,
Remember them clearly in the early days, Leo always welcoming people, always the perfect mine host and James shyly and gently smiling in the background.
Will miss Leo, even though I could not get there anymore I thought of them often, was happy thinking of them making hundreds of visitors lives happier for a visit to the Basjoe.
Ton came by and happily confirmed that the skin was healed and I can sit again tomorrow when my wheelchair is brought back.
That is good news indeed.
Labels:
Coffee ShopThe Basjoe,
Leo and James,
Ton Peeks,
Welzorg,
wheelchair
Subscribe to:
Post Comments (Atom)
9 comments:
I am sorry that you lost a friend; it was nice of you to call often to keep in touch. It would be nice if you could now visit James, now that your w/c is ready. How accessible is Amsterdam? Will you, like Marc (Wheelchair Kamikazi) have to take to the streets?
Hi Herrad,
YAY that is great news about the skin! and going out in the wheelchair with appropriate arm adjustments completed!
I am also sorry to read about the loss of your friend, that must have been a shock to find out for sure.
I am looking forward to hearing all about the outing!!
HUGS
Wonderful news about your healing! So sorry about your friend Leo. I agree with Webster: I don't know how large Amsterdam is, or if you could get there in your wheelchair, but a visit to the remaining brother may be good.
Peace,,
Muff
I do hope your chair gets to you all fixed so you can get out and about ...
Hi Webster,
Really was a shock to hear about Leo dying.
Hoping that I can visit James soon and he might come here too.
Amsterdam is not very accessible so will have to plan my routes.
Have a pleasant afternoon/evening.
Love,
Herrad
Hi Stephany,
It is brilliant Ton was delighted and we are both relieved and rejuvenated.
It has given us a huge boost.
Hearing Leo had died was a shocker, saw a photo on their website taken in March where he is so very thin.
Will get Richie to take pics of me outside.
Hi Muff,
Thanks we are very happy I can sit again, hope to get over to see James be good it has been too long since we saw him.
Hi JC,
I am looking forward to the chair coming back tomorrow and sitting well supported and going out.
Thanks dear friends for coming by good to see your comments.
Brilliant that Ton confirmed I can sit again.
Have a pleasant afternoon/evening.
Love,
Herrad
I'm sorry to hear about the loss of your friend. That's always hard.
Where do you think you'll go when you get your chair back? So happy you will get it back tomorrow! =)
Dear Herrad, hopefully you are fine. A bit wordless tonight, please allow me to wish you a good start into the Thursday of yours.
Hi Sherry,
Thanks for your commiserations about our friend Leo.
When the chair is back I want to get outside and sit in the sun, a trip down the market is favourite.
Hi Robert,
Lovely to see your comment hope you are well despite the heat.
Thanks you two dear friends for coming by.
Love,
Herrad
Post a Comment