Tuesday, July 13, 2010
Remember It Is Business.
Its 13.00 already, two huge spasms started the day, felt like I had been pushed violently up and down in the bed.
One second my arms were painful and the next it felt like I had been kicked, big spasms feel like being moved but there is no movement at all.
Tried to regain my equilibrium and get my arms stretched out and do my arm exercises, which all went well.
After my arm exercises, I asked Richie for the leg exercises, also asked if he needed to empty the catheter bag.
When he looked he saw that there was nothing like the quantity he expected, at first it seemed everything was ok, but as soon as he begun to do my leg exercises Richie saw a small leak.
Apparently the catheter was slowly coming out, luckily Richie managed to pop it back in quite quickly, sadly not before the sheet got wet.
So Richie got me out of bed and to the toilet and then under the shower which felt marvellous, it was excellent to get showered earlier today.
Feel very good that everything got sorted out so quickly, once back in bed Richie did the leg massage and exercises and then he set me up with my laptop.
I got an out of office response from Harm, from Welzorg, who should be adjusting my arm supports, the mail informed me that Harm was off on holiday until 8 August.
Have been waiting for him to come round here to adjust the arm support, especially since Michelle, my ARCA advisor called me on June 21.
She called to enquire whether the arm supports had been done or not, when I told her not, she was very surprised and said she thought it had been done during her holiday
Which was at the beginning of June.
She said she would get it sorted right away, from then until now I have not heard from her again nor has any action been taken.
Have just sent my case manager at ARCA a mail expressing my disappointment and sadness that I have been waiting so long, in fact since the end of last year.
Waiting with so much pain and discomfort, for the arm supports to be adjusted so that I can use them and do not have to support my arms and shoulders myself.
Doing that was so very unpleasant, but for a time I actually thought that the painful shoulders and arms was the progression of my MS.
It was a huge relief when Richie made me some temporary arm supports a week ago and I instantly could feel the difference and know that it was lack of support and not my MS getting worse.
What a relief that was, my case manager has just phoned and she and Michelle my mobility aids advisor will be here next week Wednesday, to discuss the situation.
Well after a cloudy and pleasantly cool start to the day, the sun and blue skied are back again its pretty, but hope it does not get any warmer as this is good.
Ok that is if for today will be doing my best to enjoy today and not get too wound up with the shortcomings of burocrats.
Keep reminding myself it is not personal, it is only business, it helps me dealing with them.
As Richie said ´´remember it is business, it´s best to not take it personally, then it won´t hurt you´´