Monday, July 26, 2010

Remaining Myself Is Important Right Now.

Henri Matisse.

Another cloudy dull looking day, there has not been blue skies and sunshine for several days now, can feel the very noticeable difference as my hands are functioning better.

Can type with both hands which are rather good, great to regain functionality all my fingers are ok except for the little finger of my right hand that is stuck straight out.

Can't do anything to persuade it to do any different guess will just have to live with it today, slept well last night was surprised that I did not wake at 06.00 in the morning.

That is quite a coup e especially as it did not seem that at first I would sleep at all, started thinking about a variety of things when Richie turned the light off.

Glad that my predication was wrong as not only did I fall asleep but I slept until 09.30 this morning when I heard Spike walking around.

Richie says it is pleasant but I am feeling rather cool today, think this calls for a long sleeved top.

Need to ask Marianne if she can make a couple of copies of the fingerless gloves for me as they keep my hands nice and warm.

Hope she can make them for me as it is much pleasanter to have warm hands than ice cold hands.

Woke up in exactly the same amount of pain as yesterday should be used to this by now but every morning it is a shock.

Funny that it’s always a new shock would have thought that by now I would be unshockable but seems not.

Was thinking about the last four years as I drifted off to sleep thinking about how it was in 2006 and how it is now.

It is difficult to watch myself progressively get worse and not be able to do anything to alter the course of MS, this cruel disease.

The only thing I can do is remain myself, which is optimistice and able to enjoy what I can, guess that is the most important thing for me right now.


Tracey's Life said...

Hang in there Herrad, you are tougher than MS. Yes I cannot imagine how it must feel like to be in your shoes, but try if you can to remember that you are not your disease, and your body does not define who you are as a person.

I will try and remember this too today.

Unknown said...

Weird about cold hands but then again I only have Patti to compare to. Never have heard her remark about cold hands. ... Then again she knows I would have offered a tacky quip such as "cold hands mean a warm heart" :)

Caregivingly Yours, Patrick

Have Myelin? said...

I have MS and I can't imagine what it is like to be in your shoes.

Goes to show how different MS is for everyone.

Your spirit always shines.

soulful sepulcher said...

Hi Herrad,

Sending lots of love


Webster said...

I have a friend who also has MS and her hands are often ice cold, like yours. I hope you get some fingerless gloves soon.

Herrad said...

Hi Tracey,
Thanks for your comment I remind myself everyday.

Hi Patrick,
Unless it is very hot my hands are cold, in the winter like ice.
Keeping my hands warm without making hand function worse is always a challenge.

Hi Sherry,
Glad you do not have MS like me, you are right it affects us all differently.

Hi Stephany,
Thanks lots of love to you too.

Hi Webster,
Hope I get some fingerless gloves soon.

Thanks you 5 friends for coming by and leaving comments.
Much appreciated.

Claudia Lawrence said...

Hi Herrad, nice post & good blog, i think u must try this site to increase traffic. have a nice day & keep blogging!!!

Herrad said...

Hi Claudis Lawrence,
Thanks for your visit and comment it is always nice to meet someone new.

Gerry said...

Oh these pictures by Matisse are wonderful even as you muse about the ravages of this disease. I am glad you got to go back to Trinidad to reaffirm your roots as I find you to be an extremely optimistic and interesting person despite this 'cruel' disease which is a triumph of the spirit to overcome adversity.

Herrad said...

Hi Gerry,
Thanks for your comment and visit, both have given me a big boost.
Have a pleasant day today.