Today I phoned and made an appointment with Ruud, from Summit for next Monday at noon to make a new adapted wheelchair seat for me.
I need a new one now, as I can no longer sit for long, sometimes it’s only 5 minutes before asking Richie to move me and at times its even less.
In the last two years my spine has become bent, nearly two years of being in bed meant that my muscles are now totally dysfunctional.
Spending so much time in bed has I am sure caused a general deterioration of everything not just my muscles.
I feel that my condition has got worse as a result, a real shame that my ex case manager was not attentive when I told her so often that the electric wheelchair did not give me any support.
The result of her inaction was a quick series of small pressure sores that healed quickly, and then on 21 August 2008, a very deep pressure sore suddenly opened.
This was not properly healed until 6 August 2010, two years later, in 2010 I did spend some days in my wheelchair only to have to return to bed for weeks.
On 10th January after a 3 weeks sitting, I had to go back to bed until May, then I had 5 days sitting and back to bed until end of June, this happened twice more in July as well as in the beginning of August.
I am amazed now that I had to spend so much time in bed and I coped so well, I guess I have finally accepted that I am a strong woman.