About trying to live with ms and discovering that suddenly most places are inaccessible and that life as a handicapped person is very different.
Thursday, April 09, 2009
Thursday 9 April 2009
It is strange but good posting on my blog every day writing about how things are for me.
On the face of it very open and honest, which I am but do wonder about that how open and honest can one be in a scary situation like this.
Can I be as open and honest as I want to be or isn't one always monitoring and editing and inhibiting oneself by too much self censorship.
Feel that somehow I am picking my way through a minefield which means that I am doing my best to keep away from the really scary bits so won't talk about them.
So seems I am mostly protecting myself by avoiding some areas and perhaps that is ok perhaps even good.
What is the point of getting upset about things that could happen surely better to keep to my intention of staying in the moment.
Staying in the present, in the here and now is better than jumping ahead and living the future now.
This blog is so very good for me, the support and feedback that I get is just tremendous and I really appreciate it very much.
Think the blog world is a very good thing its brilliant to be able to be in touch with so many people, the fact that we can communicate so quickly and easily with each other is fantastic.
Love communicating with other people the more the better as far as I am concerned as it enriches us all.
The meaning of life as far as I am concerned is to make it good for each other and therefore ourselves too.
Caring and sharing is where it’s at.
Have a good day everyone lets spread some love around us today.
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13 comments:
I've had people email me(when I was on AOL journals & also a few now on blogger) that something I've written was too painful, too raw or too "much" for online. Yet I've had others tell me they have no way of expressing how much I helped them or how much I made them feel their real feelings.
We all filter & self-moniter and inhibit to a degree, but I think you, Herrad, get out a lot as well, and I do believe it helps others in ways you do not even realize. I hope it is helping you also.~Mary
Posting is therapy! LOL
Being open & honest: I think you are right, it can be a very scary situation. I Google myself monthly to see what is "out there" about me and believe it or not, that is how I gauge how much to blog about. I was amazed what showed up on Google. Use whatever search engine you want, if info is out there, it will show up when you search.
I was troubled by Richie's blog yesterday. I am so sorry he has those feelings and can only pray that the strong support system that he has in YOU is of comfort to him.
I look forward to your blogging every day now and stopping by to see how you are doing.
Have a great day!
Anne
You are so right, sharing is the thing. The amazing ability of the internet to connect us with people around the globe allows us communicate with people who do, to one degree or another, understand a little of how life changes with MS. For me (and I'm sure a lot of others) this is something that I cannot experience any other way.
Hugs
Nat
Hi Mary,
Thanks for your comment, I agree that expressing ourselves is important.
Blogging helps me alot and the community is something that we as humans need.
Hi Anne,
Posting is therapy of the best sort as we are doing it for ourselves and with others support.
Hi Nat,
Its wonderful to communicate with people all over the world.
Its brilliant.
Love,
Herrad
Maybe if I love you enough I can start to feel as positive as you. You are a wonder. You make my world so much better. I am glad you can share your beauty with as many people as possible.
Hi Darling Richie,
Thanks fdor your comment.
You love me loads, more than I have been loved before.
Take it easy sweetheart.
Love,
Herrad
Hi Herrad -
I admire your desire to be as open as you can about what's going on. As Richie said, "what a weird part of the world MS takes us to!" That seems to apply to both physical locations, as well as the places we go in our minds.
Keep treading, my dears. A change is gonna come.
All my love,
-steve
Hi Steve,
Thanks for your comment.
MS is a strange world which I wish we could leave again.
Hate the way an innocent yawn can be so painful.
And laughing is a minefield field.
Take care.
Love,
Herrad
the truth hurts herrad.you really think i tell the full truth on my blog?caring and sharing started as a way of letting off steam,i was waiting to be assessed as carer for mum,not yet diagnosed with MS,i soon realised there was always going to be problems being totally open.not least a neighbour who reads my blog.so i also have another blog.the black journal.no one will ever read that.its for all the really shit bits of life.lol.but,going back to you,there is no point in hurting yourself worrying with what ifs,maybes,will i's.you TRY and get as much out of each day as you can my friend.we cant win with MS,so someone told me yesterday who has had it 15 years.no,but we can make the bugger sweat.keep positive,lots love mort.xx lovely pics.
It's a wonderful way to learn, and it's a raw subject. What's going on with me may be trivial in comparison to someone else, but it's not to me. Here I can talk about that with people who know what I'm talking about. I appreciate the opportunity, and the people.
Andy
"You make my world so much better."
herrad, this brought tears to my eyes, i can only pray that someday i'll find my "richie"! i love that he loves you so much, it gives me hope for the whole human race!
Hi Mort,
Thanks for your word of encouragement.
Take care.
Hi Andy,
It's good to be able to communicate with others who understand.
Hi Libby,
Thanks for your comment.
Had a tear in my eye reading it.
Love,
Herrad
Dear Herrad:
Thank you for stopping by and leaving a comment; I do appreciate the effort and thought that takes {wink}; especially in light of my continual ranting feeble blathering.
I wish so much I could say something profound or uplifting as you seem to have done in this post.
You are so right to live in the moment, for this moment moving to the next is all each of us really can count on. Those other places in a darkened corner can wait for you and another time. You are living the fullest that you know how; and that does make all the difference.
I sure hope you have a wonderful Easter Holiday with some warm sunny weather filling all those misty shadows cast upon this canvas of life, and in the shady places of less temp-id contemplation and doubt.
As always my heart felt thoughts and prayers are with you and Richie.
Yours Truly
Stan
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